Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Chronic Fatigue Syndrome: Right Name, Real Treatments

Discussion in 'General ME/CFS News' started by Aurator, Mar 12, 2015.

  1. Aurator

    Aurator Senior Member

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  2. Denise

    Denise Senior Member

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    White also says:
    "In the meantime, clinicians may be reassured that two treatments are moderately effective, safe, and cost-effective, and that patients can be given substantial hope of improvement—and sometimes recovery.[27]"
     
    aimossy and Esther12 like this.
  3. OverTheHills

    OverTheHills

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    I didn't bother reading the twaddle, but I notice that comments are open.:)
     
    *GG* and Esther12 like this.
  4. Valentijn

    Valentijn Senior Member

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    OMG, I always wanted to be able to give better answers on questionnaires! I must haves teh CBT and GETs now!!!!11!!!11!!

    :rofl:
     
    zzz, *GG*, WillowJ and 5 others like this.
  5. worldbackwards

    worldbackwards Senior Member

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    Well, according to my doctor, it's because he sent all his patients to the chronic fatigue centre and they all came back saying it was shit, Peter. So perhaps it's 'cos they don't bloody work.

    Any thoughts?
     
  6. halcyon

    halcyon Senior Member

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    Quite surprised to see this on Medscape of all places. The psychs really are in full blown damage control mode aren't they.
     
  7. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    You said it.
     
  8. A.B.

    A.B. Senior Member

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    I think it's no coincidence that it appeared on Medscape. Lately Medscape has had several CFS articles that were quite good.
     
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  9. duncan

    duncan Senior Member

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    Where has accountability gone?

    I have to wonder if ultimately the cavalier psych-clamations and steady stream of half-truths, at the expense of so many, can only be challenged - and righted - in the courts.
     
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  10. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I put a comment up on the site. (Note this is a rheumatology page.) Hopefully rather more rheumatologists will have heard of me than PW! Methink he doth protest too much.
     
    anniekim, leela, SOC and 41 others like this.
  11. A.B.

    A.B. Senior Member

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    I didn't know that Fluge and Mella considered the Rituximab study inconclusive. Is it because the primary endpoint (self reported fatigue after 3 months) was negative? Or is it because there is no biomarker? Or something else?
     
    NK17 likes this.
  12. worldbackwards

    worldbackwards Senior Member

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    Did I have to pretend to be a doctor to make comments? Bugger.
     
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  13. greeneagledown

    greeneagledown Senior Member

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    I think mainly because of a) the small sample size and b) the fact that the primary endpoint was negative, as you pointed out (although that was because they didn't know at that point how long it would take most patients to respond).
     
    NK17 likes this.
  14. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    For something of this significance a single study would not be considered conclusive for all sorts of reasons but those are the key ones here, I think.
     
    beaker likes this.
  15. Bob

    Bob

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    You can change your settings ;)
     
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  16. Sidereal

    Sidereal Senior Member

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    His essay reeks of desperation.
     
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  17. halcyon

    halcyon Senior Member

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    For some reason, the Twilight Zone theme music is playing in my head.

    "Imagine, if you will, a US website posting an article by a British psychiatrist in the rheumatology section with physiotherapy recommendations to treat a neurological disease." :ill:
     
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  18. Dolphin

    Dolphin Senior Member

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    So now both Simon Wessely and Peter White say they prefer "chronic fatigue syndrome" to "systemic exertion intolerance disease" (no major surprise to some of us of course).
     
  19. snowathlete

    snowathlete

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    They will continue to attempt such damage control even in the face of increasing scientific evidence. It is their status and their salaries at stake here as science errodes their theories, exposing their weak foundations. They have shown over a long period that their own interest mean much more to them than the suffering of patients.

    The good news is that as the biological evidence mounts up, their ideology looks increasingly desperate, cynical and irrelevant, and no amount of damage control can prevent that.

    I'm really delighted to hear them say it because it tells me that they see the name change as damaging to them. They've been struck (metaphorically speaking) and they are saying "Ouch!"
     
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  20. Dolphin

    Dolphin Senior Member

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    But still very influential as one can see from the services offered to patients in the UK and the Netherlands (for example).
     
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