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Cheeks are always red, is it a symptom

Discussion in 'General ME/CFS Discussion' started by overtheedge, Aug 7, 2017.

  1. overtheedge

    overtheedge Senior Member

    Still trying to narrow down the cause of my fatigue

    I've read in different places that rosy cheeks in those not imbibing in alcohol is a sign of low stomach acid and/or LGS but so far treatments I've aimed at those areas have accomplished little, although, don't let that discourage anyone from trying to supplement stomach acid as supplementation in the past helped me immensely it is just recently that I cannot take supplementary acid without gut burning a few hours later and I can't remember if my cheeks were rosy back then years ago when I did correct my stomach acid levels.

    What does having rosy cheeks indicate? Does anyone else have this?
    Webdog likes this.
  2. lansbergen

    lansbergen Senior Member

    Not me
  3. Webdog

    Webdog Senior Member

    Dr. Bell describes a facial flush as a sign of ME/CFS in pediatric ME/CFS.
    Orla, Jill and JaimeS like this.
  4. ryan31337

    ryan31337 Senior Member

    South East, England
    Do you have gastro symptoms after eating @overtheedge?

    Rosacea can be linked with SIBO. I developed it alongside worsening of SIBO and it got a little better when taking Rifaximin to treat SIBO.
    pattismith and lafarfelue like this.
  5. daisybell

    daisybell Senior Member

    New Zealand
    I get this. It's not rosacea for me - simply flushing. Makes me look 'wholesome and healthy' when I feel like sh*t!
  6. JaimeS

    JaimeS Senior Member

    Silicon Valley, CA
    @daisybell -- burst capillaries in the cheeks might be a thing, too; when I went to KDM he commented on this symptom. IMO, in my case it was because I'd just been on a flight. It was not always the case for me. But if you have so much vascular fragility that a plane flight causes that characteristic mottled flush, then yep... it was treated as a sign by my knowledgeable ME/CFS doc.
    Valentijn and Webdog like this.
  7. anne_likes_red

    anne_likes_red Senior Member

    Cr*p. Both my boys have this, but only on a certain level of exertion. It's noticeable how different they are from their peers though under the same exertion.
    I also had this symptom pre (official) ME onset.
    I have been researching on and off...and basically concluded it's an autonomic nervous system issue too. Yes, just like niacin flush.
  8. Webdog

    Webdog Senior Member

    Hutan and anne_likes_red like this.
  9. lemonworld

    lemonworld Senior Member

    I think I have this too. I've been wondering if it's rosacea, but not diagnosed. It's worse on my bad ME days, but I had it before I got ME.
    Hutan and anne_likes_red like this.
  10. duncan

    duncan Senior Member

    Interesting. I don't always get a flushed face, but I usually do whenever I have to focus for a while, like when I'm in a car for a spell. Almost invariably, a day later I crash.

    I wonder if there is a correlation with high C02 levels. A couple ME/CFS experts I know might write it off to hyperventilation (it being the flushed face and CO2 levels), but I tend to attribute it to a corrupted ANS.
    anne_likes_red likes this.
  11. antherder

    antherder Senior Member

    I do get this, but it's not constant.

    Facial flushing can be a symptom of mast cell disorders. Also a response to sulfites in foods and drinks.

    Then there's the Lupus butterfly rash, which can apparently(?) just be reddness, without an actual rash.

    Edit: Also, if I eat too many high sulfur foods in one meal, that seems to make my face red. A lot of supplements are sulfur compounds, so this might be worth checking as a contributing factor if you think you could have problems tolerating high sulfur.
    Last edited: Aug 7, 2017
  12. charles shepherd

    charles shepherd Senior Member

    One condition that should always be considered in someone who has ME/CFS like syptoms plus a facial 'butterfly' rash is lupus/SLE

    If you haven't already shown this rash to your doctor you need to do so

    There are various immunological tests that can help to confirm or exclude a diagnois of SLE

    SLE facial rash:


    As others have pointed out, there are other causes of red cheeks that also need to be considered here

    Dr Charles Shepherd
    Hon Medical Adviser, MEA
    bspg, Orla, Mel9 and 4 others like this.
  13. Gingergrrl

    Gingergrrl Senior Member

    Not sure if this has already been mentioned but rosy cheeks (if part of an allergic reaction) can also be facial flushing or angiodema from MCAS (mast cell disease).
    bspg and lemonworld like this.
  14. Jill

    Jill Senior Member

    Auckland, NZ
    My partner gets it . It responds to hydrocortisone but it's a pain to look so well! He looks like he's just come back from a great skiiing weekend !
  15. Forbin

    Forbin Senior Member

    When consuming alcohol (ethanol), susceptible individuals, mainly of Asian descent, can get deep flushing of the face. It's due to a genetic impairment in the process that converts the ethanol metabolite, acetaldehyde, into acetate. This leads to high levels acetaldehyde in the blood.

    It may be coincidence, but, in auto-brewery syndrome, overgrowth of a type of yeast (Saccharomyces cerevisiae) in the gut produces symptoms similar to ME/CFS by essentially fermenting ethanol in the gut. People with this condition and impairment of alcohol metabolism can get effects (I presume from acetaldehyde buildup) even if very little ethanol is produced.
    I do recall that part of the early candida (yeast) hypothesis for the generation of ME/CFS-like symptoms had to do with acetaldehyde; the difference being that, in that theory, acetaldehyde was being produced directly by candida colonies in the gut (rather than by ethanol being metabolized by the liver).
    Last edited: Aug 8, 2017
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  16. overtheedge

    overtheedge Senior Member

    No gastro symptoms after eating, I've done allergy diets and looked for such symptoms specifically too but didn't notice any

    My doc n I have been trying to treat the gut infections that always show up on stool tests and breath tests but other infections always take their place, might notice a slight improvement on the first day I take antimicrobials but not much after that

    When you say mast cell disorders does that just include mast cell activation syndrome or are there others I should be looking into.

    Found this info on mast cell activation syndrome on wikipedia

    Symptoms consistent with chronic/recurrent mast cell release:
    Recurrent abdominal pain, diarrhea, flushing, itching, nasal congestion, coughing, chest tightness, wheezing, lightheadedness (usually a combination of some of these symptoms is present)

    Laboratory evidence of mast cell mediator (N-methyl histamine, prostaglandin D2 or 11-beta- prostaglandin F2 alpha, leukotriene E4 and others)

    In addition to the face redness I do also have nasal congestion/coughing that wont go away after years, might have to get tested.
    Gingergrrl likes this.
  17. NelliePledge

    NelliePledge plodder

    Very interesting thread. A lot of the time my face looks what can basically be described as grey. :( I'm post menopausal so don't get hot flushes any more but in social situations if I crack and have a glass or two of wine I get very red faced. Equally with over exertion I go very red faced. Always thought that it was down to being overweight and unfit but I think it is something I need to reconsider.
    Hutan likes this.
  18. Gingergrrl

    Gingergrrl Senior Member

    I have seen them classified in many different ways but the two major distinctions are mastocytosis (which is a form of cancer and means you have too many mast cells that keep growing) vs. MCAS in which you have a normal number of mast cells (no cancer) but the ones that you have are "behaving badly". The symptoms of each can be identical in nature and severity but testing will show the difference.

    Another common test is Tryptase. I was always negative on Tryptase but usually positive on methyl-histamine, PG D2 and PG F2 alpha. In my most recent testing, even though my MCAS symptoms and allergic reactions are in remission, the prostaglandins remain extremely high (in the thousands) and not sure why!
  19. PennyIA

    PennyIA Senior Member

    A lot of you are bringing up temporary signs. Do any of you see long-term discoloration? My doc has dismissed my questions about it. But my nose is bright red 100% of the time for the last couple of years.

    Similar to someone who is an alcoholic (but I rarely have one drink, let alone enough to cause any type of liver damage).

    I don't see signs of anything unique... but it's just like the skin is actually discolored. I used to get a lot of black heads on my nose... but instead of getting black heads and enlarged pores - now I have red skin that seems a bit thicker than usual.
  20. Webdog

    Webdog Senior Member

    Yes. IPL (laser) treatments significantly helped the redness and burning sensation on my face and neck.
    Hutan likes this.

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