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CFSAC webinar 17 & 18 May 2016

Discussion in 'General ME/CFS News' started by Sasha, May 10, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Edit: here's the link to watch the meeting:

    http://www.hhs.gov/advcomcfs/access.html

     
    Last edited: May 16, 2016
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  2. Kati

    Kati Patient in training

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    On this link http://www.hhs.gov/advcomcfs/meetings/index.html there is a link to the videocast when time comes. (Correction: disregard, my mistake this limk is for previous meetings)

    Would it be too much asking for good news at CFSAC this year? :angel:
     
    Last edited: May 14, 2016
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  3. Sasha

    Sasha Fine, thank you

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    Well, it's been an amazing year, so let's hope so! Lots of hopeful signs.
     
    Last edited: May 14, 2016
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  4. Sasha

    Sasha Fine, thank you

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    That's weird - on that link, it says the meeting is the 18th & 19th, but on the original info it was the 17th and 18th - that is, here:

    http://www.hhs.gov/advcomcfs/index.html

    I wonder which it is?
     
    Last edited: May 14, 2016
  5. Kati

    Kati Patient in training

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    Sorry my mistake. IT says AUGUST 18-19. I should delete my post to not mislead people.
     
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  6. Sasha

    Sasha Fine, thank you

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    That was last year! :)

    This is the link for this year:

    http://www.hhs.gov/advcomcfs/access.html
     
  7. shannah

    shannah Senior Member

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    It overlaps with the Lyme conference webcast from Ottawa on Tuesday the 17th.
     
  8. lnester7

    lnester7 Seven

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    I am a bit confused, As a community I don't see even a topic on the disease name and I see some people adapting SEID. so shouldn't this be discussed / decided?
     
  9. Kati

    Kati Patient in training

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    Uhm well you know, CFSAC has no power. They can only advise the secretary and in the past decade, that didn't go too well. There might be chances that the #Millionsmissing protest might be more helpful but who knows? :rolleyes:
     
  10. Sasha

    Sasha Fine, thank you

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    Bump!

    Just flagging this up for tomorrow. 5pm to midnight UK time, I think. Some interesting stuff.
     
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  11. Gemini

    Gemini Senior Member

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  12. Sasha

    Sasha Fine, thank you

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    Four hours to go! Very much looking forward to hearing the agency updates (for once!) after all that's happened with the NIH and the intramural study in the past few months.
     
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  13. shannah

    shannah Senior Member

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    I just noticed it's two half days this time. From 2 days to 1 1/2 days and now essentially down to 1 day. Keeps getting shorter and shorter doesn't it?
     
  14. Sasha

    Sasha Fine, thank you

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    Bump!

    Starts in an hour.

    Don't forget that if you're going to watch it on your computer you need to install that programme first.
     
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  15. Valentijn

    Valentijn Senior Member

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    I'm in a hotel with the Wireless Network From Hell (and no wired internet), so I'm going to have sit this one out :p
     
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  16. Sasha

    Sasha Fine, thank you

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    This starts in ten minutes.

    Slightly confused about whether I've managed to upload the software correctly and am actually looking at the right hting, but I suppose I'll find out...
     
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  17. Sasha

    Sasha Fine, thank you

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    I think I'm looking at the right thing but has anyone got audio yet?
     
  18. Sasha

    Sasha Fine, thank you

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    Either this is running five minutes late or I've made a mess of it. :(
     
  19. Bob

    Bob

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    No audio (or video) for me yet either - just a holding slide showing.
     
    Last edited: May 17, 2016
  20. waiting

    waiting Senior Member

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    Same here -- can see the title screen, but no audio.
     
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