Ysabelle-S
Highly Vexatious
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I'm just making a general comment rather than replying to anything in particular:
ME is a complex biomedical disorder, so it's not possible to get better through mind-body therapies. However, I have no doubt that some people diagnosed as having ME actually have something else, because of the poor diagnostic criteria, and in those cases there's always a possibility they might improve that way, or they might improve anyway, regardless of whether they try one of these therapies or not.
As far as ME is concerned, a small number of people do go into remission. It's impossible to think about it as anything other than remission since we know that many have fallen ill again, even years down the line. Until medical science works out the underlying mechanisms and the biomarkers, as well as tried and tested treatments over time, we can't really think in terms of cure.
I've been ill for 32 years and I know that mind over matter doesn't work. It might seem to work short-term, but the problem is what happens afterwards. There's a temptation to overdo it, and then there's a crash, or the patient gets a virus which knocks them down again, or the positive thinking or therapy or whatever didn't work except as a placebo, and the placebo effect is over. If we have, for example, an immune-regulated energy production problem, then our bodies will malfunction until that's fixed.
There's some really interesting research going on in Norway right now that might lead to treatment. A phase three trial of a drug which will be out of patent (I think it already is out of patent in many places) means if it works, the treatment will be less expensive than before. The other drug is still in phase two, but they both seem to be pretty promising. With other research being done on energy production problems, and metabolomics studies, the field has never looked so promising. I say that having been ill for more than three decades.
ME is a complex biomedical disorder, so it's not possible to get better through mind-body therapies. However, I have no doubt that some people diagnosed as having ME actually have something else, because of the poor diagnostic criteria, and in those cases there's always a possibility they might improve that way, or they might improve anyway, regardless of whether they try one of these therapies or not.
As far as ME is concerned, a small number of people do go into remission. It's impossible to think about it as anything other than remission since we know that many have fallen ill again, even years down the line. Until medical science works out the underlying mechanisms and the biomarkers, as well as tried and tested treatments over time, we can't really think in terms of cure.
I've been ill for 32 years and I know that mind over matter doesn't work. It might seem to work short-term, but the problem is what happens afterwards. There's a temptation to overdo it, and then there's a crash, or the patient gets a virus which knocks them down again, or the positive thinking or therapy or whatever didn't work except as a placebo, and the placebo effect is over. If we have, for example, an immune-regulated energy production problem, then our bodies will malfunction until that's fixed.
There's some really interesting research going on in Norway right now that might lead to treatment. A phase three trial of a drug which will be out of patent (I think it already is out of patent in many places) means if it works, the treatment will be less expensive than before. The other drug is still in phase two, but they both seem to be pretty promising. With other research being done on energy production problems, and metabolomics studies, the field has never looked so promising. I say that having been ill for more than three decades.