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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Cfs/me/pots from vaccine

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sillysocks84

Senior Member
Messages
445
@Snow Leopard I'm sorry to hear that!

@Violeta oh wow! That would be wonderful. As much as I've googled vaccine injury, I haven't come across cease therapy! I am excited to know if it is helping your friend. This is exactly why we have to stick together. There is simply too much information out there for any one of us to know. I will be looking up the homeopathic route as well.

@Kati those are great tips. I will definitely stick to those if/when I get a chance to visit an ME specialist. I probably will eventually, just have to work out logistics:) I appreciate your wisdom.
 
Kati

Kati

Patient in training
Messages
5,497
Violeta said:
With ME doctors spread throughout the states, many people here must have visited them. I am looking through old messages to see what type of treatment they provide and how it goes for those who visit them.

@Kati, which two of those doctors did you visit, what was your diagnosis, and what is your treatment plan?

Thank you
Click to expand...
There has been many threads dedicated to the physicians and I believe you can find much of that on the 'ressources' tab.

Early in my disease I saw Dr Nancy Klimas. She is an immunologist. She performed a tilt table test, and I also had a 2days exercise test for disability.

In the last 2-3 years I have seen Dr Kogelnik he has a few treatment modalities along with providing good testing.
 
Violeta

Violeta

Senior Member
Messages
2,948
Kati said:
There has been many threads dedicated to the physicians and I believe you can find much of that on the 'ressources' tab.

Early in my disease I saw Dr Nancy Klimas. She is an immunologist. She performed a tilt table test, and I also had a 2days exercise test for disability.

In the last 2-3 years I have seen Dr Kogelnik he has a few treatment modalities along with providing good testing.
Click to expand...

What type of treatment modalities did Dr. Kogelnik prescribe for you? Did you find them successful?
TIA
 
Kati

Kati

Patient in training
Messages
5,497
Violeta said:
What type of treatment modalities did Dr. Kogelnik prescribe for you? Did you find them successful?
TIA
Click to expand...
If you don't mind I reserve the right not to answer publicly.
We are all different. We respond to treatment differently. i am thankful for the care I have received at Dr K's office.
 
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