heapsreal
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Some abx are used to fix gut problems, i suppose its a matter of not taking them blindly and doing the right things to avoid gut issues.
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Just to address the title of this thread I think it is a clear consensus that CFS does not equal bacterial infrections. Many of us would have been cured or close to it. However, bacterial infections often play a role in CFS and many of us have those infections as part of our chronic illness.
Antibiotics do alter the immune system and can make you feel better--but if you have a chronic infection they will eventually make you feel much worse--herxheimer. I didn't just say anything profound, but just added for those who are new.
Isn't there a theory that inappropriate use of antibiotics can be a cause of dysbiosis? I have no doubt that for some people fixing the gut could be curative, but I would weigh up the risks before taking antibiotics, it's not always a "free lunch", as they say.
I took erythomyocin for rosacea
...the dentist wants me to take short term abx as part of a periocare protocol and I am not sure I will do it, afraid it could stir something up and then not finish the job. and its amoxicillin. would be for 8 days post cleaning every 2 weeks or so apart for 4 quadrants of cleaning. If i decide to just get the cleanings that often could keep me in a constant flare alone....but I digress
thanks for the info heaps, and others
I have wondered about sinus infection too after a friend of mine with RA told her doctor she needed to treat it cus of headaches and i wouldnt have guessed she had what I considered sinusitis...I don't get a lot of runny noses (I think there are dif types of cfs, the mucous type and the neuro type ) but I get headaches that at times were made worse by lying down
I don't know if I have heart to try abx again, or if could easily find someone willing to give them actually. Heaps where do you find someone able and willing to test your NK cell? I only had mine tested at WPI a couple years ago, it was classic low but now I don't know if those were reliable labs. Can you get them tested in mainstream?
I took erythomyocin for rosacea the summer before everything changed (into cfs/fm etc) I was pretty hearty then but I think that erythomyocin hosed me. It was probly responsible for me getting a gallstone, one of the factors, I was really fit and active and muscular and young so shouldnt have gotten one for the classic reasons. So it made me sort of leery of abx, but when I hear success stories I do get intrigued....want to protect gut though. the dentist wants me to take short term abx as part of a periocare protocol and I am not sure I will do it, afraid it could stir something up and then not finish the job. and its amoxicillin. would be for 8 days post cleaning every 2 weeks or so apart for 4 quadrants of cleaning. If i decide to just get the cleanings that often could keep me in a constant flare alone....but I digress
To my knowledge, probiotics do not permanently colonize the gut. And the good bacteria gets eradicated by the antibiotics.
hi adreno,
Can you tell me why you're saying probiotics don't permanently colonize the gut ? I've been hearng for the last 7 years that they do. I saw 1 study that said they didn't but it was on people with chronic diarhea. I'm assuming they had some kind of infection in which case probiotics were useless. I tried to treat h pylori this way too. No luck ..
Just a word of caution, when on long-term doxycycline it is VERY important to take occasional breaks and load up on probiotics (this is recommended by Dr Garth Nicolson who promotes use of abx for CFS). I took doxy for a year and had good improvements, enough that I could work full time again. I thought I was cured. But I did not take those precautions (breaks and probiotics). The problem is that if you don't take a week off about every 6 weeks or so you can get some pretty serious side-effects. I know, I had them, including inflammation in the pancreas (took an ultrasound to find that), serious problems with digestion, carbohydrate intolerance, hypoglycemia, a sudden seizure disorder, and a sudden worsening of my CFS that has not reversed. These problems all emerged within a few days, unexpectedly. So I stopped the doxy for a few years, then tried again, but the original improvement never returned. My suspicion is that the doxy knocks back some of the worse bacteria, such as spirochetes (Lyme and others), but it can not clear them from the entire body, only from the blood. And Lyme and other bacteria get embedded in the lymphatic system. I have wondered whether the doxy actually caused the bacteria to move to safer locations, might be why my symptoms worsened. Anyway, now it is years later and I have found several protocols that have helped give me some improvements that are persisting (multi-B12 and rehydration). I may try abx again sometime, but will be far more cautious.