Ember
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By Llewellyn King
MARCH 30, 2013 6:26PM
MARCH 30, 2013 6:26PM
More: http://open.salon.com/blog/llewellyn_king/2013/03/30/chronic_fatigue_syndrome_hidden_in_plain_sightI am a reporter and my beat is hell. But it is neither the eternal hell of the Bible, nor Tartarus, the ancient Greek underworld, where the gods of mythology locked up their enemies.
The hell I write about is more prosaic: It is here and now. It is the hell of those who live with a disease that is incurable, has inadequate therapies, indifferent government attitudes, social stigma and no strong public voice.
The disease is Chronic Fatigue Syndrome (CFS), a benign name for a malignant condition....
Although probable CFS outbreaks can be traced back to at least the 19th century, it is still hidden in plain sight. One million CFS sufferers in the United States and millions more elsewhere will continue to suffer until society gets behind the moral imperative of researching a cure. The immediate needs are to comfort the sick, educate the doctors and shame the government.