CBT/GET recoveries

[heapsreal]

With all the articles posted online from experts saying cbt/get improve or help cfsme recovery from this illness, there must be a number of people on this forum, which is probably the most popular involving mecfsers, that have improved/recovered from cbt/get or exercise .

Can those who have significantly improved or recovered with cbt/get or exercise please post here. Also if you had before and after nk function testing or other immune/infectious testing showing improvements , please post.

If whats been posted in studies or in news paper articles on exercis/cbt/get etc etc, we should have a significant number of posts in this thread from people who its helped. And how long people have had this improvement .

Cheers

 

[Scarecrow]

 

[Sea]

Remember though Heaps, the problem is that it doesn't work for people who are members of a support group.

 

[heapsreal]

Remember though Heaps, the problem is that it doesn't work for people who are members of a support group.

Thats right false illness beliefs ???
@!#$%÷× tools

 

[Ellkaye]

Great post !

Lunatics in London behind Pace. Pure raw lunatics. They have no idea about depression or ME or how to rig a study properly enough... But they know about CFS and inserting 'fatigue' everywhere.

Nutters at best.they are in too deep. The only way to hide is for them to go deeper. They have no choice. They built their careers on this.

Odd and Bizarre goings-on really. Nothing can come near them. They are Untouchable.
There can be nothing that rivals them. Nothing. No matter what it is.

Patients should not follow the advice of these lunatics. They need to know not to trust these doctors. Or they could end up really sick. It s important they know.

 

[ukxmrv]

Just in case someone accuses "Phoenix Rising" of not being interested in cures I'd like to say that these CBT/GET success stories aren't being posted to other UK internet forums either.

 

[heapsreal]

So far its easy to add up those who have improved with cbt/get.

 

[Ellkaye]

The end for PACE surely
It can't stand
Leading academics have torn it apart

 

[Countrygirl]

Pretty quiet on this thread isn't it?

Shall I give it say..........a couple of years before returning.............just to give a genuine success story time to appear............or would that be too soon????

 

[ScottTriGuy]

Maybe there would be more responses if it was titled:

Recovery stories from cbt/get.

 

[elliepeabody]

I hate to rain on your parade OP but I'm not sure how people would know if they have improved or recovered as they are encouraged by the CBT / GET model not to focus on their symptoms.

 

[alex3619]

So far its easy to add up those who have improved with cbt/get.

Ummm, feelling math challenged. That would be .... ?

 

[alex3619]

We know how this story ends, but let me start by saying I appeared (once upon a time, as all good fables go) to be helped by both CBT and graded exercise.

This was classic CBT. I think it might help some cope, but nothing more. I never tried the new even babblier versions.

I sometimes seemed to be initially helped by very careful graded exercise. I tried this soooo many times. The fact that it took many tries but I eventually gave up tells you something. Back when I was at the lower end of moderate I started walking a few times, not far. Then a short jog. Then before the end of week 2, with having achieved the grand goal of maybe a minute of jogging .... crash. No energy. Could barely stagger along. It took six months to recovery that time. It was my last attempt. Sudden catastrophic failure with huge recovery time is the norm.

Strength training was a bit more successful a few times, but eventually wound up in the same place. Back then though I had no idea how critical it was to avoid any aerobic exercise.

Given what we know about diagnostic error, and exercise physiology, it appears highly likely that any recovery via exercise is in misdiagnosed patients. It would be very nice to get an idea of how many there were like that though.

 

[Mij]

does this include burlesque? I've heard . . .

 

[Seven7]

I think that there is value on understanding the AT and studying if the AT can be increase in CFS via therapy (monitored AT and the whole hooked up to a machine to monitor all BP,HR, Oxygen, CO2....) while exerting (the chosen activity based on current level, so it could be a little as standing/sitting up)

In my humble opinion we cannot get better while having the AT in the floor. But after 2 years of trying I am not sure it can be done. This is where I think the money should go GET/exercise related.

 

[panckage]

In my case exercise has greatly reduced the symptoms caused by muscle atrophy (which is a symptom of CFS).

I've found for strength training particularly helpful. Especially isometric exercises for core and legs using gymnastic rings/suspension trainer. This method uses a minimum of energy

 

[Ellkaye]

How do you feel after?

 

[SOC]

...muscle atrophy (which is a symptom of CFS)...

According to which definition of the illness?

 

[minkeygirl]

isometric is not graded exercise. And what's your definition of minimal energy? Thats purely subjective. If you are well enough to hang on rings you're infinitely better than I am.

Does reaching for the remote a few more times each day constitute graded exercises?

 

[alex3619]

I've found for strength training particularly helpful. Especially isometric exercises for core and legs using gymnastic rings/suspension trainer. This method uses a minimum of energy

I think non-aerobic strength and flexibility training is where the exercise physiologists are working toward. In time there will be guidelines.