Old Bones
Senior Member
- Messages
- 808
I've just become aware of a newly published book about ME/CFS. It's getting rave reviews. Even more exciting -- the author is a Canadian, from my own province of Alberta.
The book is: "Lighting Up a Hidden World, CFS and ME" by Valerie Free. Here's the website:
http://www.valeriefree.org/
And here's one of the reviews I particularly liked:
"As we read about one thriving creative life after another, curtailed and shut down, one can only imagine what a comfort it will be to sufferers who have been discounted and ignored for years, to see their experience reflected over and over again in these pages. And it’s absolutely impossible not to feel horror and outrage at the inequities in funding for ME/CFS, with budgets that are miniscule compared to illnesses with far fewer sufferers. These personal accounts give visceral impact to the cruelty of this illness, which won’t allow its sufferers to push their limits to try to live their lives, without punishing them with debilitating crashes. For those who believe, as did Matthew Fairman that 'One only had to pull oneself together and rise above the obstacle,' the harsh reality is entirely counter-intuitive and must be devastating. It’s certainly devastating to read about it."
~Rhonda Hayter, Editor (U.S.)"
My intent is to revisit my list of media contacts and provide, via email, a link to the Press Release, and also the website. Perhaps other Canadians would consider doing something similar, particularly including your local news media. Of course, there's no reason to limit spreading the word just within Canada.
Here's a link to the the Press Release:
http://www.valeriefree.org/press--media.html
The book is: "Lighting Up a Hidden World, CFS and ME" by Valerie Free. Here's the website:
http://www.valeriefree.org/
And here's one of the reviews I particularly liked:
"As we read about one thriving creative life after another, curtailed and shut down, one can only imagine what a comfort it will be to sufferers who have been discounted and ignored for years, to see their experience reflected over and over again in these pages. And it’s absolutely impossible not to feel horror and outrage at the inequities in funding for ME/CFS, with budgets that are miniscule compared to illnesses with far fewer sufferers. These personal accounts give visceral impact to the cruelty of this illness, which won’t allow its sufferers to push their limits to try to live their lives, without punishing them with debilitating crashes. For those who believe, as did Matthew Fairman that 'One only had to pull oneself together and rise above the obstacle,' the harsh reality is entirely counter-intuitive and must be devastating. It’s certainly devastating to read about it."
~Rhonda Hayter, Editor (U.S.)"
My intent is to revisit my list of media contacts and provide, via email, a link to the Press Release, and also the website. Perhaps other Canadians would consider doing something similar, particularly including your local news media. Of course, there's no reason to limit spreading the word just within Canada.
Here's a link to the the Press Release:
http://www.valeriefree.org/press--media.html