I think if I ever wanted to leave this planet, which I don't, it would be because of pain and the exhaustion it brings. I am no stranger to pain, I've had migraines since 11 years old and a serious back operation with complications at 33 so when I got pain because of CFS/FM well I wasn't surprised. Also because of inadequate medical intervention for years for migraines, I'm almost sure my pain pathways are different than they should be. Of course at 39 years, after being diagnosed with Lupus or rheumatoid arthritis came every NSAIDS known to humans, I just got sicker and still had pain then was diagnosed with CFS/ME/FM. I also have arachnoiditis , a spider web-like tissue that surrounds the spine causing inflammation due to back complications. So enter Darvocet, which worked until it was pulled off the market and now I'm on Vicodin. Vicodin was great because it many times gave me energy. I could take it before going grocery shopping and get through the task. Well as one or two turned into three a day ( it took seven years) and still the pain was lurking too close for comfort, I tried Ocycodone which didn't always help with pain but made me sleepy. Most of my pain is in the muscles, some spine and bones and some small fiber neuropathy but the worst is located in legs especially knees and then arms. When the weather changes I am in exuciating pain for days. Light massage by me helps, pressing on trigger points to release tension in muscles and Epsom salt baths help, the third Vicodin kicks in and by 9PM I'm feeling like a person. My whole day is wasted. People who call me on the phone barely recognize my voice, visually others know immediately that Nancy is not right. I have spent this freezing winter in bed and got the bare minumn done which mentally is making me crazy. Now add POTS which is under control but will show it's ugly head at a moments notice. Oh and another tidbit, my extremely low BP goes very high when I'm in the throes of pain. What do I do? I am a person not a trembling lump in bed. Help me get some of my life back.