Despite Our Losses, People with ME/CFS Want More
We've been cheated by ME/CFS and we all know it. That's a no-brainer, if you'll pardon the cognitive pun. And loss didn't just result from the bad things that befell us. It also encompasses the good things that just ... never came. The absence of bounty. Of wholeness. Of peace.
Discuss the article on the Forums.

Campaign to inform UK MPs re XMRV

Discussion in 'Action Alerts and Advocacy' started by Jenny, Nov 2, 2010.

  1. Jenny

    Jenny Senior Member

    Messages:
    1,375
    Likes:
    544
    Dorset
    A member of the Foggyfriends message board has started a one-man campaign to inform all UK MPs about research into XMRV, and in particular Judy M's findings from the UK study.

    As a member of FF I don't think I'm allowed to post links, but to see what's going on you can join and look for posts by Xinnian.

    Jenny
     
  2. fred

    fred The game is afoot

    Messages:
    400
    Likes:
    2
    I have looked at this thread and have concerns about it: the method that is being used to lobby politicians; the poster's big claims of high level connections with those in power; the apparent assumption that there is no advocacy/activism already taking place in the UK that this new campaign may compromise; the way that personal communiction with Judy Mikovits is discussed and posted verbatim; the poster's claim that he has access to the WPI's UK study paper and that it may be published on Weds 10th November; and his request for funds to support his mail out campaign to all MPs.
     
  3. Jenny

    Jenny Senior Member

    Messages:
    1,375
    Likes:
    544
    Dorset
    Yes Fred. I just hope that he is well-intentioned but rather naive.

    Jenny
     
  4. maryb

    maryb iherb code TAK122

    Messages:
    3,520
    Likes:
    3,130
    UK
    If it is going to compromise something then why don't we know about it?
    Only part of what Judy said was posted (she was asked if this was okay)
    He didn't make any request for funds - people offered to help with donations if it was required.
     

See more popular forum discussions.

Share This Page