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Caffeine

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
Makes me wired, have to avoid like the plague. Other people I know it helps a bit. I think it depends how your adrenals are - mine are not great.
 
Messages
2,565
Location
US
Wired. I avoid caffeine.

Decaffeinated tea has a stimulant which I have to be careful of too. In small amounts, like a half cup, I have benefits. I notice some of the bad wired effects too if I have more.

Chocolate is very low on caffeine but also has a natural stimulant in it. So I limit cacao too like with decaf tea.
 

SOC

Senior Member
Messages
7,849
Generally bad. I avoid caffeine for the most part. Like exercise, there's always a payback later. I do use caffeine when I'm exhausted and have to do something, but I do it knowing that the next day or two I'll be in a minor symptom flare.

It doesn't make me wired, though, but I don't take much even when I do use it.
 

Ayaju

Senior Member
Messages
160
Location
San Diego, CA
The most recent thing I heard was from David Wolfe who said that (coffee) is good for some people and not for others! I love coffee! But I am down from a grande bold to a short bold! That's 8 oz. Starbucks every morning! With organic heavy whipping cream and a splash of structured water to make it healthier!

Judy
 

Snowdrop

Rebel without a biscuit
Messages
2,933
I find coffee helps me.
I have continued to have 1 or two cups a day.
The first one when I get up (which is sometimes in the afternoon or late morning). Those days I usually have one cup.

For years I have thought that drinking coffee in the evening did not bother me. However as my sleep was so bad I avoided it always. But a few years ago I found pain relief in the codeine that my Dr gave me which also had caffeine in it.

It's funny you brought this subject up just now because I've been thinking for a while that coffee might actually help me at night.

I had a coffee last night and didn't notice a difference in sleep one way or the other but did notice a small difference in pain.
Although it's early days yet, I'm going to continue with a coffee at night. I also tend to want it then.
Perhaps continuing with a night coffee may leave me too wired eventually. I'll post back.
 

SOC

Senior Member
Messages
7,849
I wonder what the physiology difference is that makes caffeine beneficial for some of us and bad for others?
 

maryb

iherb code TAK122
Messages
3,602
Location
UK
@Xhale19991
I'm a poor metabolizer of caffeine according to my 23and me results. this explains why I can't have caffeine after lunchtime, or it interferes with my sleep.
Morning I need it to get me going - I have 2 tsps a day - I have 2 coffees - 1tsps of decaff and 1 of non decaff in each - boy do I look forward to it:)
 

rosie26

Senior Member
Messages
2,446
Location
NZ
I love having a coffee at a cafe, it is a treat for me, yay to be out of the house !!!:D I am so..... happy, all is good with me and the world feeling. ( if only ).:rolleyes:

I find one coffee in the morning is all I can do in one day and it is a small teacup full, not large, otherwise I would get the awful wired-ness, and tremors which is really unpleasant.
 

Raindrop

Senior Member
Messages
129
Location
USA
Before I became disabled from this illness when working I had to drink mega amounts of caffeine to avoid
falling asleep at my desk. That was many years ago and I am sure it made my over-all condition worse!
Fast forward.......For many years I have found that it is harder to function without a **small** amount of caffeine
when I get up in morning.
Because prior I "burned out my stomach" from the acid in the mega caffeine, I now only tolerate a single shot of
caffeine in milk (to coat the stomach) in the form of a cappuccino. I have this every morning and it
helps a tiny bit with the brain problems (as has been borne out in many studies of "normals")
Any more than this and I get jittery and it messes me up. Have to be VERY careful not to have
any caffeine after 5pm or can't sleep. Tea over-stimulates me and don't like the taste
anyway. I love coffee houses! That is the independent sort; not the big chains.
 

Raindrop

Senior Member
Messages
129
Location
USA
I love having a coffee at a cafe, it is a treat for me, yay to be out of the house !!!:D I am so..... happy, all is good with me and the world feeling. ( if only ).:rolleyes:

I find one coffee in the morning is all I can do in one day and it is a small teacup full, not large, otherwise I would get the awful wired-ness, and tremors which is really unpleasant.

Yeah, Rosie! Let's go out to one of the cafes!:redface: (Too bad you are in another country though- could
be pretty hard to pull off!!) I totally agree - It is such a treat to be able to get out and do
this!
 

rosie26

Senior Member
Messages
2,446
Location
NZ
Yeah, Rosie! Let's go out to one of the cafes!:redface: (Too bad you are in another country though- could
be pretty hard to pull off!!) I totally agree - It is such a treat to be able to get out and do
this!

Yes, I'd love to meet you at a café Raindrop :D Bet we would have lots of laughs you and I too lol xxx
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
Caffeine and especially coffee are good for me--at least they improve my symptoms--everything from OI (vasoconstricting) to just feeling a lot better with it. I only drink it in the am--one or two mugs.

Sushi
 

IreneF

Senior Member
Messages
1,552
Location
San Francisco
Coffee is one of the few things that helps me. I drink it even when it upsets my stomach, because it helps my headaches, muscle aches, and ability to think.
 

Allyson

Senior Member
Messages
1,684
Location
Australia, Melbourne
t
@Xhale19991
I'm a poor metabolizer of caffeine according to my 23and me results. this explains why I can't have caffeine after lunchtime, or it interferes with my sleep.
Morning I need it to get me going - I have 2 tsps a day - I have 2 coffees - 1tsps of decaff and 1 of non decaff in each - boy do I look forward to it:)

I have the same thing after aabou 11 am if i drink coffee i don t sleep hat night

but now i have started asking for blends with low caffeine content

i was off it for years but now i take a little every morning to get me going a bit - and I really look forward to it too @maryb.! In the afternoons i have a few squares of dark chocolate

and it is a vasoconstrictor so in small doses may help the POTS

I suspect a lot f people use it to mask their POTS symptoms - my mother drank cup after cup all day long - then took sleeping tablets to sleep; she also smoked and nicotine is another vasoconstrictor

Ally
 

Raindrop

Senior Member
Messages
129
Location
USA
t

I have the same thing after aabou 11 am if i drink coffee i don t sleep hat night

but now i have started asking for blends with low caffeine content

i was off it for years but now i take a little every morning to get me going a bit - and I really look forward to it too @maryb.! In the afternoons i have a few squares of dark chocolate

and it is a vasoconstrictor so in small doses may help the POTS

I suspect a lot f people use it to mask their POTS symptoms - my mother drank cup after cup all day long - then took sleeping tablets to sleep; she also smoked and nicotine is another vasoconstrictor

Ally

Pardon my ignorance, but because I have POTS and also like caffeine AM to try to get a lift up from
the horrendous process of getting up in the morning, can you explain a bit more how caffeine helps POTS?
(I also have HUGELY dysregulated BP (highs to lows) and high Pulse.) Never thought of that!
 

xchocoholic

Senior Member
Messages
2,947
Location
Florida
Caffeine pills don't make me jittery like coffee so I suspect there's some other chemical in coffee doing this. I'm less jittery with Sozo coffee but not entirely.

I started using caffeeine to undo the effects of my nightly klonopin. Caffeine blocks adenosine and keeps us from feeling sleepy.

Last month, I started using caffeine pills to counter the sleepy feelings I get from PEM. It works for that but I'm still getting my rubbery legs and arms feeling. And I still can't think as well as if I just took a few days to rest.

It doesn't help my OI, oh and pots. A 1/4 - 1/2 tsp of salt straight, slowly let dissolve on tongue, typically helps tho.

Tc ... x