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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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View results: Caffeine - is it safe and helpful for you?

My illness involves prolonged post-exertional malaise--everyone please answer
Votes: 31 59.6%
Caffeine is always helpful, with no serious consequences for my ME/CFS/Fibro
Votes: 2 3.8%
Caffeine is sometimes helpful, with no serious consequences for my ME/CFS/Fibro
Votes: 6 11.5%
Caffeine is usually helpful, but it has consequenses for my ME/CFS/Fibro--I have to moderate intake
Votes: 9 17.3%
Large amounts are safe for my ME/CFS/Fibro
Votes: 3 5.8%
Small amounts are safe for my ME/CFS/Fibro
Votes: 9 17.3%
Small amounts are OK for me, if taken with caution
Votes: 9 17.3%
I try to avoid it, but it's sometimes helpful
Votes: 8 15.4%
It doesn't agree with me, but is not dangerous for me
Votes: 1 1.9%
No effect on me at all
Votes: 1 1.9%
Large amounts are unsafe for me and adversely affect my ME/CFS/Fibro
Votes: 9 17.3%
Moderate amounts are unsafe for me and adversely affect my ME/CFS/Fibro
Votes: 9 17.3%
I can't touch the stuff - It messes up my system in various ways, but has no long term consequences
Votes: 13 25.0%
I can't touch the stuff - It has a dangerous adverse effect on my ME/CFS/Fibro
Votes: 8 15.4%
I hate tea/coffee/cocoa, so I rarely have any caffeine
Votes: 0 0.0%
Not sure (I haven't decided)
Votes: 2 3.8%
Caffeine has no adverse effect on my ME/CFS/Fibro, but has other undesirable consequences for me
Votes: 3 5.8%