62milestogojoe
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Hi, Just interested if any PR members have ever undertaken a screen for brain autoantibodies. Thanks
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Hi, Just interested if any PR members have ever undertaken a screen for brain autoantibodies. Thanks
I did, all is negative:
anti-GABA b
anti-Glycine
anti-NMDAR
anti-AMPAR
anti-DPPX
anti-Hu
anti-Yo
anti-Ri
anti-Ma2
anti-CV2
anti-amphysin
bloodBlood or CSF tests?
I did, all is negative:
Hi Patti could you say how many years ago you were tested? I ask because new Ab is coming on line all the time according to the Immunology dep't at the biomed centre I work at. Thanks for the comprehensive list.I did, all is negative:
anti-GABA b
anti-Glycine
anti-NMDAR
anti-AMPAR
anti-DPPX
anti-Hu
anti-Yo
anti-Ri
anti-Ma2
anti-CV2
anti-amphysin
Thanks, that's interesting and relevantyes it was a month ago @62milestogojoe
Sorry, just one more question Patti. Would you describe your symptoms at the time of the test as mild, moderate or severe? I don't know if this has any relevance to test results.yes it was a month ago, in a reliable laboratory in my country (France) @62milestogojoe
I had blood tests at the Breakspear about 10 years ago which purported to show astronomical amounts of lots of different types. But every other doctor I showed them to said they were nonsense.
@Jenny do you remember which specific autoantibodies showed astronomical levels from Breakspear? I assume Breakspear is a reliable lab (I am not too familiar with it) but assuming that it is, how did they interpret such high levels and what type of treatment did they propose (even though the other doctors felt it was nonsense). Did you feel that the test results correlated with your symptoms? Thanks in advance for any info and I realize it was ten yrs ago so you may not remember!
well I had a course of pulsed antibiotics from february to May (4 months), so I don't know if this is important.Sorry, just one more question Patti. Would you describe your symptoms at the time of the test as mild, moderate or severe? I don't know if this has any relevance to test results.
They didn't know how to interpret the test results and the only treatment recommended was to play sport, particularly tennis! And this was when I could barely sit up for more than 5 minutes!
Good Lord, they discovered you had brain autoantibodies and the "treatment" was to play tennis? I want to say that I have never heard such nonsense before but sadly I have. I am hoping you have since found a new doctor.
I can't check the exact terms used to refer to the auto-antibodies I was tested for as I don't have the results to hand. However I'm pretty sure the general term used was 'neurological auto-antibodies' and I was very high on several different types.
I'll post some findings later, you are right, there is confusion. I'll scan some of the kit inserts from the immunology department at work-there have been only 3 ME directly associated auto Ab elicited to this date I believe in a German study.I think there are a lot of confusing terms for these autoantibodies including "neuronal" and "paraneoplastic" (which have both been used to describe my case) but I do not have any of the actual brain or NMDA/encephalitis antibodies which I think the original poster was asking about (but I could be wrong)!