blurry vision though eye doctor says prescription is fine!

[hurtingallthetimet]

i think others have posted on this before...cant remember where...ive probably have but its something that bugs me so much..

every eye doctor tells me my prescription is as good as can get for eyes..but still have have extrememly blurry vision...cant see at night to drive..one eye doctor rolled his eyes and said in a snarky way that no one can see to drive at night...i know thats not true i use to be able to...

dont understand why if test are normal...prescription is waht it should be i still cant see...ive asked my regular doctor and been told its common in fibro/cfs pepole...but im so tired of it...

tired of not being able to see and its getting worse...

 

[SickOfSickness]

I was upset at eye docs too. They just prescribe the nearest diopter (.25) and never had other answers for me. Even worse when they act like you are lying or being difficult, which I have felt from them. That is just rude of them.

My amount of blurriness varies. Some of my problem is from staring at the computer screen, reading, or other use of my eyes. I feel sure that some is due to my acetylcholine levels so that is why it varies. Stress usually makes it worse.

I would like to wear amber glasses at the computer and maybe when driving. Polarized glasses help me in the daytime.

Eye exercises help me a little. People are supposed to take lots of breaks if they are focusing near. I forget the exact numbers but something like look 20 feet away for 20 seconds every 10 mins. Or your eyes are strained being restricted to the near focus points.

Maybe try some supplements for night vision.

 

[nanonug]

every eye doctor tells me my prescription is as good as can get for eyes..

See if an antihistamine such as Allegra helps. Elevated levels of histamine are known to cause blurred vision.

 

[taniaaust1]

Ive posted on my blurred vision at times here. With me thou its something which comes and goes and the sight issue shows up on my eye tests as it actually affects my ability to read at times... (but which can actually change depending on how my eyes are being at the time).

Due to my eye issue.. sometimes I need to wear glasses but most of the time I dont (and when its very severe... glasses dont help and Im left half blind.. OI can cause that too for me).

 

[peggy-sue]

I believe a lot of the problems are simply muscular.
I get this all the time. (blurriness, unable to focus).

To focus, you need to alter the shape of the lens in the eye - this involves muscles pulling it.
If they're tired and not pulling with full strength, you won't be focussing properly.

 

[Enid]

Yes I remember that severe phas too peggy-sue - eyes just couldn't refocus with loss of depth vision. It still comes and goes now and again depending on general health. Likewise blurry vision.

 

[nanonug]

I believe a lot of the problems are simply muscular.

This is my opinion too. Elevated histamine levels are known to cause hypotonia.

 

[hurtingallthetimet]

thanks for the advice and info...i will bring up to my doctor again, thoguh when i have in past have been told it common in people with fibor/cfs...and eye doctor just says prescription is right for eyes..but i cant see...eyes too blurry so something isnt right...tired of not being able to see : (

will try the drops ihave some at home...my hubby usues when does lawn etc. will see if that helps..
thanks again

 

[SickOfSickness]

I believe part is muscular but I am sure my double-vision part is related to whenever I am "tired but wired". When really past the point I have to stop, but when I am pushing myself. Usually because I have to and not because I want to, or when I just can't break out of that.

 

[Calathea]

My eye specialist, who has researched eye problems in ME (and says that 90% of us have them), tells me that the problems are both muscular and neurological. It's nothing to do with your prescription, which is about the shape of your eyeball. You need to find yourself an eye specialist who has experience in dealing with ME, and failing that one who has experience with autism spectrum disorders and dyslexia (they tend to get similar neurological visual problems) may be able to make an educated guess. I've been to my local eye hospital and they were absolutely clueless, they couldn't even manage to run tests which would show up my substantial eye problems. Thankfully I eventually found specialists who do know their stuff, although my main eye specialist has gone on medical leave.

 

[hurtingallthetimet]

calathea thanks for info how did you find this specialist? sounds like the only eye doctor ive heard of that knows about these illness and whats going on..

i know this may sound silly but i really dont know how to proncue the name for ME..im embarassed to say that..and though ive told several eye doctors i have fibro/cfs they act like its nothing...they actually dont talk about it at all...drop it like it was never written in history or said..

my regular doctors are the ones told me its common in fibro/cfs

 

[Calathea]

I honestly can't remember how I found her, it was years ago, but she's in a different country from you and not able to work right now due to medical reasons, so it's not much use for you. Try doing a lot of asking around, in different internet forums and so forth. I suspect there are a few other conditions about where if you find a doctor who is good with that, chances are they'll be good with ME eye problems too.

I've never said "myalgic encephalomyelitis" to a doctor - either they recognise the name ME or they don't! They always do in my experience, but the name seems to be used more in the UK.

Do you experience dry eyes at all, out of curiosity? I know the dry eye community a bit (look up the Dry Eye Zone, excellent website and forum), and they might have some ideas. Even if it's from a different cause, say muscular fatigue, they may be able to help you learn about proper resting of the eyes and so forth. It's a possible place to start, anyway.

 

[taniaaust1]

I believe part is muscular but I am sure my double-vision part is related to whenever I am "tired but wired". When really past the point I have to stop, but when I am pushing myself. Usually because I have to and not because I want to, or when I just can't break out of that.

My eye specialist said that part of my issue is also to do with my brain.. to focus.. your brain has to get your muscles to alter the lense shape and due to me having a astigmatism.. at times my brain isnt altering my lense right to focus.

He actually said he'd never seen a person come good from this issue like I did (he was actually astounded when I went back to get the glasses he advised and my eyes were found this time to be fine). I went from being told I needed to have glasses to having great sight again for a couple of years and not needing them at all.

The supplements I started taking helped my brain, which in turn helped my ability to focus well again, hence fixing my sight.

My eye specialist wanted to know which supplement helped but as I was on tons of them at the time, I didnt know which was responsible for the change back to being good again. (I was at that time taking C, D, B vitamins, B injections, TMG, fish oil, calicum and a heap of other supplements).

 

[fayee.t]

My eye specialist said that part of my issue is also to do with my brain.. to focus.. your brain has to get your muscles to alter the lense shape and due to me having a astigmatism.. at times my brain isnt altering my lense right to focus.

He actually said he'd never seen a person come good from this issue like I did (he was actually astounded when I went back to get the glasses he advised and my eyes were found this time to be fine). I went from being told I needed to have glasses to having great sight again for a couple of years and not needing them at all.

The supplements I started taking helped my brain, which in turn helped my ability to focus well again, hence fixing my sight.

My eye specialist wanted to know which supplement helped but as I was on tons of them at the time, I didnt know which was responsible for the change back to being good again. (I was at that time taking C, D, B vitamins, B injections, TMG, fish oil, calicum and a heap of other supplements).

Hey, I too have the eye problems. Could you let me know all the supplements you were taking, if that's possible? Would really appreciate it, thanks

 

[Calathea]

ME Research UK have written some articles about eye problems in ME. Contact them and I'm sure they'll forward you copies, then you can show them to optometrists.

I have an excellent optometrist who is aware of ME eye problems. I found him by asking the eye hospital for recommendations. This worked even though the eye hospital itself was spectacularly useless with the ME. They still know who the good local optometrists are.

I made the blurry vision worse for a while by wearing an eye mask that was too tight. I think it can be caused by low blood pressure too, I always get it for a while after acupuncture treatments and the acupuncturist says acupuncture tends to cause a blood pressure drop during the treatment. It might be worth seeing if an electrolyte drink helped, if that were the case. Since I'm out and about to go home when it happens, I have an electrolyte drink and a snack while I wait for the taxi, and it passes fairly soon.

 

[taniaaust1]

Hey, I too have the eye problems. Could you let me know all the supplements you were taking, if that's possible? Would really appreciate it, thanks

No idea now, that was back in 2012 or before and I was taking over 11 different things... I did list quite a few of them in that post.

 

[dazzammm]

eye problems are rarely listed on symptoms on the internet so its good to see im not alone.
been looking for a prescription im happy with and a good optometrist for a decade. got some irlen-type glasses coming soon so will see if they help.

I think eyes are unique re symptoms are concerned. brain fog you can cope with, pain can be ignored to a certain extent but your eyes give you a constant reminder of your problems. and with that comes the depression /anxiety which only makes them worse. (especially if your job involves sitting under bright lights, looking at a computer screen, 8 hours a day)

I find the best thing for this is rest and not stressing your body to break this cirle.

ill let you know if the coloured lenses help.

can anyone suggest a good optometrist in the herts/beds/bucks area who understands our problem