Belgiangirl
Senior Member
- Messages
- 108
Stopped looking for answers 5 years ago, but by coïncidence I found my blood labs again.
Seems for over 15 years they are telling the same thing:
- low ferritin (stays very low even though iron supplementation by mouth)
The iron or transferin values may be normal, too low or even too high! Still ferritin will be very low.
- aparently also low folicid acid (which i only know as of yesterday...)
- anti parietal cells in intestines
- small cysts in kidneys
Significantly deviating:
- RBC: too few, too large (but not so deviating that it is extremely unter normal persons so do
so MCV and MCH too high
- Blood plates: too few often
- WBC: these too few, these too many (mixed image always)
Anion gap -whatever it may be: borderline.
Cortisol levels screwed.
Plasma yellow, bilirbubin too high.
Usually neutrophiles too less, lymphocytes too much
Immature reticulocytes : too few
Erytroblasts: too much
Monocytes: too much
Akfa 2 globuline faction: too less
Albumine fraction: too much
Anion gap: too high
Lipases: too high
Fosphate: too low
Alkalic phosphatose too low
Urine:
WBC esterases
WBC: too much
---> this is not one blood lab.
This are many bloodlabs aggregated during +10 years, every finding that is repeated (so more than once) has been put down.
Hematalogy (only had it done once)
- Complement C3 : --
- cortisol non-morning: ++++
- CD19: ++
- CD3-CD16.56 borderline
- CD3-CD16.56 abs Natur Kill ---
- C4 --
Endometriosis
Very sensitive to chemicals/ allergic
Thymusrest (or hyperplasia ????)
- palpable lymphnodes all over the place
Tested negative for coeliakie.
Polyuri especially at night!!!! Have to wake till 10 times a night to go pee because my urine feels to irritate .... I can't stand this feeling...
Extreme fatigue, muscle fatigue / weaking (extreme), PEM, very dificult to do anything, not bedbound but really housebound, being able to do a bit around the house like 5-6 hours a day but that really is it. Further all textbook symptoms: Sicca complaints, aftosis, swollen lymph nodes, sore throats and hearse voice, ...
Must note that I always also had extreme difficulty moving because of my legs and arms feeling so heavy (while my BMI is 16 and not going up whatever I do...)
Okay I start to realise that this low ferritin and some other deviations have been there all my life and may make sense somehow comebined.
Low ferritin (beyond normal population) - low folicid acid (between borders normal population but on low side)
But too big, deformed, RBC's that are too few ?
This is sth that may make sense combined isn't it?
I think we should all put our labs online in an orderly excell overview so that some epidemiologist outside can start building the general picture.
Seems for over 15 years they are telling the same thing:
- low ferritin (stays very low even though iron supplementation by mouth)
The iron or transferin values may be normal, too low or even too high! Still ferritin will be very low.
- aparently also low folicid acid (which i only know as of yesterday...)
- anti parietal cells in intestines
- small cysts in kidneys
Significantly deviating:
- RBC: too few, too large (but not so deviating that it is extremely unter normal persons so do
so MCV and MCH too high
- Blood plates: too few often
- WBC: these too few, these too many (mixed image always)
Anion gap -whatever it may be: borderline.
Cortisol levels screwed.
Plasma yellow, bilirbubin too high.
Usually neutrophiles too less, lymphocytes too much
Immature reticulocytes : too few
Erytroblasts: too much
Monocytes: too much
Akfa 2 globuline faction: too less
Albumine fraction: too much
Anion gap: too high
Lipases: too high
Fosphate: too low
Alkalic phosphatose too low
Urine:
WBC esterases
WBC: too much
---> this is not one blood lab.
This are many bloodlabs aggregated during +10 years, every finding that is repeated (so more than once) has been put down.
Hematalogy (only had it done once)
- Complement C3 : --
- cortisol non-morning: ++++
- CD19: ++
- CD3-CD16.56 borderline
- CD3-CD16.56 abs Natur Kill ---
- C4 --
Endometriosis
Very sensitive to chemicals/ allergic
Thymusrest (or hyperplasia ????)
- palpable lymphnodes all over the place
Tested negative for coeliakie.
Polyuri especially at night!!!! Have to wake till 10 times a night to go pee because my urine feels to irritate .... I can't stand this feeling...
Extreme fatigue, muscle fatigue / weaking (extreme), PEM, very dificult to do anything, not bedbound but really housebound, being able to do a bit around the house like 5-6 hours a day but that really is it. Further all textbook symptoms: Sicca complaints, aftosis, swollen lymph nodes, sore throats and hearse voice, ...
Must note that I always also had extreme difficulty moving because of my legs and arms feeling so heavy (while my BMI is 16 and not going up whatever I do...)
Okay I start to realise that this low ferritin and some other deviations have been there all my life and may make sense somehow comebined.
Low ferritin (beyond normal population) - low folicid acid (between borders normal population but on low side)
But too big, deformed, RBC's that are too few ?
This is sth that may make sense combined isn't it?
I think we should all put our labs online in an orderly excell overview so that some epidemiologist outside can start building the general picture.