readyforlife
Senior Member
- Messages
- 137
This is the same procedure that the VA IOM advocacy groups attempted but where did that get them? Do you think based on their previous actions against significant opposition which included Congress, that their actions would be any different? This would mean that if they created a criteria bettter than the CCC or ICCC-ME, it would in affect overturn their Gulf War Veterans ruling from GWI to CMI.
Given the thirty year history of HHS, NIH, CDC, do you really believe this will happen and given the fact that Vernon and Friedman are on both panels. I believe it is naviety to believe otherwise.
They don't have enough money to fund legitimate scientific research projects into ME/CFS as Lipkin has stated. They turned him down but gave $250,000 in grants each year to Friedberg over 6-7 year period for patients to cope with this illness plus the money allocated to the IOM for this dog and pony show when all of our researchers/clinicians oppose this contract and who are the real experts and quite capable in defining this illness!
Why this sudden push to use the IOM when the previous chairman stated this is highly unusual procedure for the IOM to define illness criteria especially coming on the heels of the recent VA IOM decision?
Once they go behind closed doors, all bets are off.
I start to second guess my self and think well MAYBE with the right panel we won't get screwed over. But one thing keeps bring me back to reality and that's my woman's intuition. Your statement below is something that has been on my mind for awhile now and keeps me from believing that they wont screw us over again. Why would the IOM come up with a criteria that our specialist, doctors and advocates/patients agree with, when it will just shoot them in the foot regarding their definition for the Gulf War Veterans.
This would mean that if they created a criteria bettter than the CCC or ICCC-ME, it would in affect overturn their Gulf War Veterans ruling from GWI to CMI.