International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

Billionaire's whole family is struck with Lyme disease

Discussion in 'Lyme Disease and Co-Infections' started by Kate_UK, Sep 22, 2015.

  1. Kate_UK

    Kate_UK Senior Member

    Messages:
    256
    Likes:
    318
  2. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    Battery Muncher, Hip and RL_sparky like this.
  3. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    Extracts...
     
    Last edited: Sep 27, 2015
    Dufresne, duncan, Yogi and 5 others like this.
  4. RL_sparky

    RL_sparky Senior Member

    Messages:
    306
    Likes:
    1,557
    California
    Yogi, bertiedog, Bob and 1 other person like this.
  5. drob31

    drob31 Senior Member

    Messages:
    1,296
    Likes:
    768
    It'll be interesting to see if throwing money at it is enough.
     
    duncan likes this.
  6. *GG*

    *GG* senior member

    Messages:
    6,246
    Likes:
    4,892
    Concord, NH
    Thought the UK gov't says you don't have Lyme there? Did they get it while in Country or when traveling?

    GG
     
  7. mermaid

    mermaid Senior Member

    Messages:
    621
    Likes:
    1,140
    Cornwall, UK
  8. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    Extracts:

     
    GaryK, Dufresne, duncan and 5 others like this.
  9. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    Yogi, merylg, Antares in NYC and 2 others like this.
  10. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    https://www.facebook.com/johndcaudwell/posts/1065128190173498
     
    Dufresne, Yogi, merylg and 2 others like this.
  11. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    From John Caudwell's Twitter account:
    https://twitter.com/johndcaudwell
     
  12. Battery Muncher

    Battery Muncher Senior Member

    Messages:
    620
    Likes:
    1,700
    This is a terrible thing to happen... but, and I realise this is very cold of me, I hope it spurs greater research into the illness (through greater funding etc).

    There have been quite a few celebrities who have come down with Lyme. I can only think of Avril Lavigne off the top of my head, but I remember reading about several others.
     
    sillysocks84, RML, SB_1108 and 2 others like this.
  13. Antares in NYC

    Antares in NYC Senior Member

    Messages:
    582
    Likes:
    1,656
    USA
    Avril Lavigne, Matthew Modine, Alec Baldwin, Yolanda Foster, Rebecca Wells, Amy Tan, Richard Gere, Ashley Olsen, Jamie Lynn Sigler, Neneh Cherry, Debbie Gibson, Kathleen Hannah, Daryl Hall, Parker Posey, Karen Allen, Jane Alexander, Christy Turlington, Jennifer Capriati, Alice Walker.... And many more.

    Basically a legion of people with a disease that "doesn't exist". Just the “normal aches and pains” of daily NORMAL living.... You know
     
    sillysocks84, duncan, RML and 7 others like this.
  14. Battery Muncher

    Battery Muncher Senior Member

    Messages:
    620
    Likes:
    1,700
    The “normal aches and pains” of daily normal living... enough to cripple professional athletes, actors and singers in the prime of their life, whilst leaving the general population unscathed!

    What could possibly account for this.
     
    duncan, Valentijn and Antares in NYC like this.
  15. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

    Messages:
    1,140
    Likes:
    4,628
    Toronto, Canada
    Where did you find this list of famous people with Lyme? Is there one for M.E.?

    Thanks.
     
  16. Antares in NYC

    Antares in NYC Senior Member

    Messages:
    582
    Likes:
    1,656
    USA
    Google knows everything. ;)

    Didn't find one list, just searched for celebrities stricken with Lyme.

    As far as celebrities with ME/CFS, I know of Cher, Keith Jarret, Laura Hillenbrand, Randy Newman, Blake Edwards, John Rutter, The Flea (Red Hot Chilly Peppers), Stevie Nicks, and Howard Bloom
     
    Last edited: Sep 24, 2015
  17. maryb

    maryb iherb code TAK122

    Messages:
    3,520
    Likes:
    3,124
    UK
    Does anyone know where J Cauldwell and family went for testing and treatment? Never mentions it anywhere.
     
    duncan and Ritto like this.
  18. Bob

    Bob

    Messages:
    10,703
    Likes:
    34,252
    England (south coast)
    I haven't come across that info either. I also haven't established whether they have been treated, or if the son has chronic Lyme or is responding to treatment.
     
  19. justy

    justy Donate Advocate Demonstrate

    Messages:
    5,361
    Likes:
    12,329
    U.K
    I think he said somewhere that they had been in the states - so perhaps got testing there? I have written to him and told him my story as have many others. He has said very strongly that he will get a team of people together to lobby the govt, the NHS, whoever they need to approach to get chronic Lyme recognised in the UK and appropriately treated through the NHS. I really hope he succeeds. So far in my family me and my daughter have Lyme - haven't tested my three other kids or husband yet, but strongly suspect they may come up positive.
     
    ukxmrv, Bob, bertiedog and 1 other person like this.
  20. RosieBee

    RosieBee Senior Member

    Messages:
    104
    Likes:
    84
    UK
    John Caudwell is on fire! Here he is on ITV this morning and he did a radio broadcast today as well. He gives a passionate account of his son's long illness with Lyme disease and describes how he intends to use his money and influence to change diagnosis and treatment in the UK. He quotes how Lyme disease is frequently found other chronic illnesses including Alzhiemer's and ME. Someone with chutzpah and the ability to make a difference!
     
    GaryK, Antares in NYC, Yogi and 6 others like this.

See more popular forum discussions.

Share This Page