Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Bedside Chats with Ben: Ron Davis

Discussion in 'Latest ME/CFS Research' started by Janet Dafoe (Rose49), Nov 9, 2017.

  1. halcyon

    halcyon Senior Member

    @Ben H @Janet Dafoe (Rose49)
    The bulk of the evidence from the literature and epidemiological data over the last 83 years points to enterovirus as the cause, not herpes viruses.

    1) Were enteroviruses looked for in this study? If yes, what methodology was used?

    2) How were the samples collected, stored, and processed for this study? Was the blood drawn immediately into an RNA preservative to protect fragile viral RNA from RNase activity in the blood sample?

    3) What blood fractions were tested in this study? Serum/plasma only or was buffy coat also included?

    Yes, the blood is a sewer, but it's not benign. Viral genomic material will be subject to enzymatic degradation and phagocytosis by leukocytes. If you really care to track this down, look towards the past evidence. Enterovirus antigen (VP1) has been found in the blood of ME patients repeatably.
    pathogenunknown and merylg like this.
  2. ash0787

    ash0787 Senior Member

    well ye, the process was already described its just that I thought they could already print these electrode things onto paper or at least somehow clean the original ones, and that the test would take 5 or 10 minutes each time, but actually he said it take an hour.

    so if they only have like 5 of them and it take 1 hour to do it and 2 hours to clean it, say they work 9 hours per day then they can only do 15 experiment per day but it need to be done thousands of times to get the truth, maybe thats why ron is not focusing entirely on that line of inquiry, perhaps he could find a way to prove these 'viruses' that people keep talking about, but I thought that would already be covered by the big data study, also I wonder what happened to ritux trial supposed to be revealed.
  3. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    The main issue is not the testing. Its the isolation of substances. If you cannot isolate things to be tested then you cannot do a proper test. If we knew specifically which protein or other substance it was, and could isolate a sample, we would probably have a confirmation or disconfirmation within a week.
  4. JD_Lucas


    Would someone like to summarise the main issues discussed into 3 or 4 points for a image to share on social media? I think it would be useful for those who don't have time or the cognitive energy to listen to the whole interview.

    I'm playing around with some ideas for graphics and thought portraits of the main characters in ME/CFS advocacy and research may be useful, so today I drafted this image of Prof Davis below.

    Attached Files:

    Jill T, Joh, Mel9 and 1 other person like this.
  5. Riley

    Riley Senior Member

    PatJ likes this.

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