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BBC Radio 5 Live Sleep Expert Uses SEID (Over ME/CFS)

Discussion in 'General ME/CFS Discussion' started by CantThink, Feb 23, 2015.

  1. CantThink

    CantThink Senior Member

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    This surprised/shocked me.:wide-eyed:

    I was just listening to BBC Radio 5, and they have a regular guest who is a sleep doctor on. At 00.40 a lady called in about her daughter who she said has CFS, and sleep issues...

    When the presenter asked the sleep expert about CFS, he said something like: you told us the correct name for CFS....
    Expert: yes, SEID (he pronounced it SEED). Systemic Exercise Intolerance Disease... Then corrected to Exertion (!!... A lot of us predicted people are going to confuse exertion with exercise).
     
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  2. CantThink

    CantThink Senior Member

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    P.S. he did also then say something along the lines of: also know as M.E. ... Myalgic Encephalomyelitis... or Chronic Fatigue Syndrome.
     
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  3. Mij

    Mij Senior Member

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    They have mistakenly said disorder instead of disease on one channel here.
     
  4. SOC

    SOC Senior Member

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    I find it a bit unfortunate that the expert automatically assumed that person had SEID just because the were diagnosed in the UK with CFS. It is not an automatic switch CFS=SEID, especially if Fukuda or Oxford were used in the diagnosis.

    Nevertheless, I appreciate the he is trying to raise awareness.
     
    Last edited: Feb 24, 2015
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  5. CantThink

    CantThink Senior Member

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    @Mij

    He might have said disorder - hmmm! I was so shocked, as I didn't expect the term to be adopted here so quickly (or necessarily at all). I was trying to take it in but I'm really trying to sleep (as usual) so I might have missed the disorder versus disease.
     
  6. charles shepherd

    charles shepherd Senior Member

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    Was this Professor Jim Horne - who takes an interest in ME/CFS? Professor Horne also came to the MRC workshop in Oxford that was organised by the MRC Expert Group on ME/CFS.
     
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  7. Cheshire

    Cheshire Senior Member

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    Yes
    upload_2015-2-24_11-6-56.png
    The programm can be listened to there
    http://www.bbc.co.uk/programmes/b0536ksc
     
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  8. CantThink

    CantThink Senior Member

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  9. CantThink

    CantThink Senior Member

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    It was apparently. I felt it was good that he fairly reflected the disease to the general public and being a professor, his opinion counted (or should count).
     

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