International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Authors suffering from CFS/ME

Discussion in 'Information and Resources' started by Dr.Patient, Jul 10, 2014.

  1. justy

    justy Donate Advocate Demonstrate

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    Nasim Marie Jafry - 'The State Of ME' which is a loosely autobiographical novel.

    She was nominated for the Scottish Asian Womans award this year, but had to pull out from the interview process due to ill health.

    More here:
    http://velo-gubbed-legs.blogspot.co.uk/
     
    Dr.Patient likes this.
  2. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    ProHealth just came out with a list of celebrities with ME/CFS:
    http://www.prohealth.com/ME-CFS/library/showArticle.cfm?libid=19057&B1=EM071614C

    The author of the article, Erica Verrillo, is herself an author.
    Here are the celebrities:

    Laura Hillenbrand, Author
    Keith Jarrett, Musician
    Michelle Akers, Athlete
    Blake Edwards, Film Producer/Director/Screenwriter
    Randy Newman, Composer/Singer/Pianist
    Mama Chill, Rap Artist
    Cher, Actress/Singer
    John Rutter, Composer
    Michael Crawford, Actor/Singer
    Leigh Hatcher, Journalist/Author

    I realize some of these people have already been named; the article has more in-depth information on each celebrity if you want to read more about them.
     
    Dr.Patient likes this.
  3. Jheldt

    Jheldt

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    Does writing articles count? I plan on writing an ebook/book in the future but just write articles now?
     
  4. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    No, just books now...sorry...
     
  5. Soundthealarm21

    Soundthealarm21 Senior Member

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    "Cher was diagnosed with Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) in 1991. ME/CFS is a severe illness that can lead to symptoms that affect the brain and gastrointestinal, immune, and cardiac systems."

    I was just reading on some celebrity (tabloid BS) website about people with chronic illnesses. I found this description of ME/CFS with Cher very interesting. They call it ME, they call it severe, and they say it is a multiple systems illness. This just from some crummy celebrity paparazzi website.

    Does this show an evolution of perception over the years?
     
  6. Tally Pendragon

    Tally Pendragon

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    Hi Dr Patient,
    I've been diagnosed with ME/CFS for over 12 years, and have only been well enough to start writing novels again seriously within the past 2 years, although I've been able to manage a little research here and there along the way.
     
    Last edited by a moderator: Jan 22, 2015
  7. Hope123

    Hope123 Senior Member

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    Dorothy Wall: http://www.dorothywall.com/books.html

    Leonard Jason: researcher of ME/CFS but also known in other fields: https://global.oup.com/academic/product/principles-of-social-change-9780199841851?cc=us&lang=en&

    Maria Mann: Verity Red's Diary

    Julie Rehmeyer: She wrote an article about ME/CFS but she's also a science writer for Wired/ Discover, etc.
    http://www.washingtonpost.com/natio...fff312-d458-11e3-8a78-8fe50322a72c_story.html

    If you define author to mean people who have published, several people who've published in medical journals are personally affected.
     
  8. worldbackwards

    worldbackwards Senior Member

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