Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Article: Wall Street Journal on "Unlocking Chronic Fatigue Syndrome"

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Mar 22, 2011.

  1. Phoenix Rising Team

    Phoenix Rising Team Senior Member

  2. Cort

    Cort Phoenix Rising Founder

    Here is what I put

  3. Gamboa

    Gamboa Senior Member

    For the most part, I really liked this article. Thanks so much to Amy Dockser Marcus yet again.

    The only part that bothered me, although it is absolutely the truth, is the first sentence where it says that ME/CFS has "long considered by many doctors to exist in patients' heads". I find too many articles in newspapers highlight the fact that many physicians still believe that ME/CFS is a psychological disorder. They often have that suggestion in the title even though the subsequent article is about how it is NOT a psychological disorder. I'm always concerned that this actually suggests to non-medical people that this could be a possibility. I am concerned that many people just read the headlines or the first few sentences of an article. Most non-medical people I talk to are unaware that there is a lot of controversy surrounding this disease. They believe the disease to be real and that it has a biological cause mostly because they actually don't know much about it (sometimes ignorance is a bliss!). I actually don't mention the controversy and just inform people about all the things that ARE known about ME/CFS. Hopefully one day soon we can have articles about this disease where there is no mention whatsoever of psychology, psychiatry, laziness, or malingering.
    I don't mean to be critical of this particular article, although it might look that way. Really my post should be directed at other articles by other people but I just happen to be in the mood and my brain is functioning at the moment so I have to "strike while the fire is hot".
  4. SpecialK82

    SpecialK82 Ohio, USA

    Ohio, USA
    I agree Gamboa. At what point in time do we get to stop prefacing articles with the outdated psycological beliefs and just start out describing the conditon. Everytime they bring that up it creates doubt in the reader's mind.

    I do however - love, love, love Amy Dockser - she is incredible and I beleive she truly cares about our illness.
  5. Cort

    Cort Phoenix Rising Founder

    Those would be good comments to put in the comment section.

    Hopefully most people, by the time they were done with the article, will have forgotten that sentence. I think I would have.

    In any case the best way to support this kind of reporting which emphasizes pathophysiological research and ensure that it continues is to click on the article and comment.

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