International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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"Are you Disabled?" (April 15 blog post by woman with ME)

Discussion in 'General ME/CFS Discussion' started by Dolphin, Apr 15, 2016.

  1. Dolphin

    Dolphin Senior Member

    April 15 blog post by woman with ME.

    Looks at and explains models of illness & disability e.g. Medical Model, BioPsychoSocial Model & Social Model

    Explains why the social model of disability is not a perfect fit for ME e.g. even with support many won't be able to work full-time

    Discusses a little the new report on the PACE Trial and the biopsychosocial approach, "In the Expectation of Recovery".
    Last edited: Apr 15, 2016
  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    good question "are you disabled?", my states disability service deems ME/CFS people not disabled as they view it instead as a "sickness". (a cop out to prevent them having to provide disability services for ME/CFS something I have got a court case against them for currently).

    There is so much politics which go into words as "disabled".

    So are you "disabled" or "sick"? How you are termed can and does affect things for many of us. One of these words over the other can mean whether you will be given the support you need or not.
    Last edited: Apr 16, 2016
  3. justy

    justy Donate Advocate Demonstrate

    Im also considered sick, but because it is chornic and I cant walk due to PEM and need a wheelchair I can also be disabled - its difficult when social care providers don't agree if you are sick or disabled.
  4. Mrs Sowester

    Mrs Sowester Senior Member

    I identify as disabled and describe myself as having limited mobility. Yes, it took a few years to accept it, for the first 3 I had the belief that I would get better and thought of myself as ill. Now I accept my condition as a chronic disability, having my application or a blue badge accepted a few years back really hit home.
    ahimsa, justy, belize44 and 2 others like this.
  5. Jenny TipsforME

    Jenny TipsforME Senior Member

    One of the things I touch on in the post is the tension between hoping to get well and identifying as disabled which seems like a permanent identity change. Another way to see it can be that even if we get back to 100% we can still identify on a personal level as Disabled, because we'll still have had the lived experience of being disabled. We'll always see the world differently due to our experience of ME.
    ahimsa, justy, belize44 and 2 others like this.

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