• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Are you a twin?

Nielk

Nielk

Senior Member
Messages
6,970
Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email denlander@aol.com
 
F

FancyMyBlood

Senior Member
Messages
189
Nielk said:
Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email denlander@aol.com
Click to expand...

I'm a (dizygotic) twin, but live in The Netherlands. So unfotunately I don't think I can be of any help, but feel free to let me know if I'm wrong.
 
S

spacee

Messages
26
Location
Florida
I am a identical twin

I responded to Dr. E's request for twins. Have not heard back.

Also, I told him about the CFS Twin Study I was in back in the 1995 era done by the Univ of Washington.
He may be looking over their data. I don't know really. Just that he has not responded.
 
Nielk

Nielk

Senior Member
Messages
6,970
The office has been closed for the past 3 days because of Jewish holiday. I'm sure they will see it on Monday. If you still don't hear from them let me know and I'll contact them. I put Fancymyblood in touch with them.
 
You must log in or register to reply here.