Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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APPG on ME: Notes from parliamentary meeting on 17th March (UK)

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Apr 10, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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  2. charles shepherd

    charles shepherd Senior Member

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    Template letter to use to ask your MP to attend the next APPG on ME meeting during ME awareness Week on May 11th:

    [Your address here
    including email address
    if you have one]

    [MP’s address here:
    you can search for it on the
    Parliament website]

    Date

    Dear MP’s name

    Re: drop-in session for MPs on Wednesday 11 May

    As one of the 250,000 people in the UK living with myalgic encephalomyelitis (M.E.), I am writing to highlight the impact of this disabling, neurological condition, and what you can do to support constituents, including me, who live with it.
    M.E. is a widely misunderstood illness, and many of those affected experience considerable barriers in accessing healthcare, welfare benefits and social care.

    You can personalise the letter by sharing your personal experience of M.E. here. We recommend keeping it to a single paragraph, as experience tells us that letters kept to one page in length are most effective.

    I urge you to attend an awareness-raising drop-in session for MPs in Room Q, Portcullis House on Wednesday 11 May, 12.30pm to 2pm, hosted by the All-Party Parliamentary Group (APPG) on M.E., or send along a representative.
    Lunch will be provided, and you can pick up a new M.E. information pack with key facts and details of how you can support your constituents affected by this awful condition.

    The secretariat for the APPG on M.E. can provide more details, including information on joining the APPG, which exists to improve the lives of people with M.E. and is currently leading an inquiry asking how people with M.E. can better access appropriate social care. Please contact the secretariat on policy@actionforme.org.uk

    Yours sincerely

    Your name
     

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