• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Anyone live in the boston area and ready to protest tomorrow?

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Rrrr

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judderwocky

Senior Member
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328
http://healthcare.change.org/petitions/view/xmrv_allow_science_to_progress


I've worked for several non profits doing media, petitions, online campaigns and stuff... I worked for HRC, Planned Parenthood, and Equality Tennessee...
i wanted a petition that would do several things
1) show our mostly (male) elected officials that this disease is also connected to prostate cancer
2) show them there are studies backing us up - use this an opportunity to teach them about the disease
3) frame our desired action as a nutural continuation of scientific progress
4) connect our issue to general public health....
 
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