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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Anyone know a good doctor in the Greater Manchester area?

MeSci

MeSci

ME/CFS since 1995; activity level 6?
Messages
8,231
Location
Cornwall, UK
Hilary said:
Hi @Jay Dezi - I tried the LP quite a few years ago, basically because I also knew someone (with a clear diagnosis of ME apparently) who had done well with it, although NOT recovered - and she has suffered relapses since then. To cut a long story short, it was a total waste of £600 :)bang-head:) and I got worse as a direct result. It does appear to be effective for some people (I believe especially younger ones) - but did they have ME in the first place?
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But there are also some younger sufferers who do recover, and the LP could wrongly be regarded as the cause of such recovery.

By 'younger' I mean still at school, I believe. But not all of those can recover - a lot are as unlucky as the older ones.
 
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