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Anyone get tooth pain on antivirals?

Discussion in 'General ME/CFS Discussion' started by saint, Nov 21, 2014.

  1. saint

    saint Senior Member

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    I was on Famvir and my fibro doc switched me to Valcyte. Something worked because my energy is better than it's been in 8 years.

    I'm getting severe - I mean severe - neuropathy in every tooth that has ever had a filling as well as caps. I searched online and could only find a few instances of people experiencing this. However, I couldn't find out whether their teeth hurt from antivirals - or if it was the virus itself/ the toxins causing the phenomenon.

    I don't even know whether it's related to the antivirals. Doctors/ Dentists can't give much help here.

    I'd appreciate hearing from anyone who has experienced this and determined the cause.
     
    *GG* likes this.
  2. minkeygirl

    minkeygirl But I Look So Good.

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    I have lots of tooth pain and throbbing throughout my mouth. It seems to be worse when I'm not feeling well. I don't think it's A/V related since I had it before I started them.

    When I up my A/V's I get pain but not in my teeth but who knows?
     
  3. saint

    saint Senior Member

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    Did you ever find out what was causing it? The illness? I've tried remineralizing toothpaste, but I think it's beyond that - there is something systemic going on. My parents didn't take care of my teeth when I was growing up - but this tooth throbbing just started a few weeks ago.

    I've been doing supplements for neuropathic pain but it hasn't been helping. It's really bad. I traded the fatigue now I have a new symptom.
     
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  4. minkeygirl

    minkeygirl But I Look So Good.

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    I'm assuming it's from my ME. Nothing else is off. Nothing has helped although I find stress makes it worse. I can tell when I'm stressed, it really acts up.

    It's just another thing I tolerate.
     
    *GG* likes this.
  5. saint

    saint Senior Member

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    Tolerate seems to be the best word describing 'living' with this condition - if you can call it that. I do have to say that either the Valcyte, NT factor, or S-acetyl-glutathione did something - I got my energy back. Now I'm trying to play catch-up with all the things that have been left undone while I was incapacitated. It's overwhelming. Very overwhelming.

    I did find that tooth pain is a side effect of EBV and parvovirus - the viruses attack nerves. I am disgusted with the medical establishment - I paid doctors for help and they should have told me this. I should have been put on an antiviral years ago.
     
    *GG* likes this.
  6. minkeygirl

    minkeygirl But I Look So Good.

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    Makes sense since I have EBV among other things.

    But how crazy is this? I got new glasses today. I had a horrible time with this last year with horrible eye pain.

    Well now all my teeth are throbbing. Wth?

    Being angry is wasted energy imo. I need it for other things.
     
  7. maryb

    maryb iherb code TAK122

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    @saint
    tooth pain is so common with this illness, it waxes and wanes just like other symptoms, I go through periods where I think I need dental work and then the pain just goes. Maybe a combination of bacteria and viruses? Hope yours settles down, tooth pain is bad.
     
    minkeygirl likes this.

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