Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Anyone else have elevated CRP and ESR?

Discussion in 'General ME/CFS Discussion' started by crypt0cu1t, May 24, 2018.

  1. crypt0cu1t

    crypt0cu1t IG: @skagginwagon

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    Does anyone else have an elevated ESR and CRP? I also have elevated Acetylcholine receptor binding antibodies and salivary protein 1 antibodies.

    I have my first followup with Dr. Chheda today and I am wondering what questions I should be asking about these results.
     
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  2. used_to_race

    used_to_race Senior Member

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    I would imagine you'd want to see an experienced rheumatologist and immunologist. Would be good to get a full autoimmune workup, including ASCA, ANCA, anti-CCP, ANA 12+, and whatever else. The immunologist could look at your T cells and B cells and try to get an indication of where the elevations are coming from. Ask Dr. Chheda what she suggests. I'd be interested to know whether she thinks this could be a T-cell or B-cell mediated process and what that means for possible treatment (IVIG, Photopheresis, Rituximab, etc).

    The salivary antibodies could mean you have a rare form of Sjogren's.
     
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  3. Runner5

    Runner5 Senior Member

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    PNW
    Yeah I have that - but I'm not sure what it means. My doctor thinks I have fibro and/ or an auto-immune thing. I had more blood tested today, and EKG and a quick blood sugar test. I didn't go to a CFS doc though, I just went into the only general practitioner that has an opening in my area and said, 'help' but she's bee awesome sauce so far.
     
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  4. crypt0cu1t

    crypt0cu1t IG: @skagginwagon

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    California
    Hmm, interesting
    Dr. Chheda says that I definitely have something autoimmune going on, but she believes that there is a specific cause to it.
     

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