International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Anyone else have elevated CRP and ESR?

Discussion in 'General ME/CFS Discussion' started by crypt0cu1t, May 24, 2018.

  1. crypt0cu1t

    crypt0cu1t

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    Does anyone else have an elevated ESR and CRP? I also have elevated Acetylcholine receptor binding antibodies and salivary protein 1 antibodies.

    I have my first followup with Dr. Chheda today and I am wondering what questions I should be asking about these results.
     
    alkt likes this.
  2. used_to_race

    used_to_race

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    I would imagine you'd want to see an experienced rheumatologist and immunologist. Would be good to get a full autoimmune workup, including ASCA, ANCA, anti-CCP, ANA 12+, and whatever else. The immunologist could look at your T cells and B cells and try to get an indication of where the elevations are coming from. Ask Dr. Chheda what she suggests. I'd be interested to know whether she thinks this could be a T-cell or B-cell mediated process and what that means for possible treatment (IVIG, Photopheresis, Rituximab, etc).

    The salivary antibodies could mean you have a rare form of Sjogren's.
     
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  3. Runner5

    Runner5 Senior Member

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    PNW
    Yeah I have that - but I'm not sure what it means. My doctor thinks I have fibro and/ or an auto-immune thing. I had more blood tested today, and EKG and a quick blood sugar test. I didn't go to a CFS doc though, I just went into the only general practitioner that has an opening in my area and said, 'help' but she's bee awesome sauce so far.
     
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  4. crypt0cu1t

    crypt0cu1t

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    Hmm, interesting
    Dr. Chheda says that I definitely have something autoimmune going on, but she believes that there is a specific cause to it.
     

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