Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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Anybody else wondering about the children in the news

Discussion in 'General ME/CFS Discussion' started by Heartl, Oct 12, 2018.

  1. Heartl

    Heartl Wife, mom, animal lover

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    Reno, NV
    I feel like the children in the news that have sudden paralysis from a virus might have something similar to CFS or EBV. When I first got sick I couldn’t lift my arms. Later diagnosed with EBV and CFS (or they just don’t know)
     
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  2. Pyrrhus

    Pyrrhus I will survive, dammit, even if it kills me.

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    This past summer has been an especially bad enterovirus season. It's not yet clear which enterovirus is behind this summer's hand-foot-mouth cases and acute-flaccid-myelitis cases. Preliminary work in Colorado points to Enterovirus 71, but it's too early to be sure.
     
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  3. Heartl

    Heartl Wife, mom, animal lover

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    I was wondering if any of these children just received the flu shot. I’m not sure they would mention on the news if they had or not. For me when I was younger (in my 20s) every time I got the shot I would have some weird neurological symptoms
     
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  4. Dakota15

    Dakota15 Senior Member

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    Midwest, USA
    Just wanted to leave this update that I read from today:

    https://www.cnn.com/2018/11/13/health/afm-cdc-update/index.html?no-st=1542143234 - "As More Cases Confirmed, CDC Says Evidence Suggets 'Viral Association' for AFM"

    Some interesting notes from the article:

    - "The CDC also seems to be getting closer to determining a cause of the disease. According to the new report, Clinical, laboratory, and epidemiologic evidence to date suggest a viral association."

    - "In the past two weeks, the agency has come under criticism from its own medical advisers for not zeroing in on a virus as a cause and instead also considering causes such as genetic disorders and environmental toxins."

    - "Two weeks ago, four of the CDC's outside medical advisers on AFM expressed frustration to CNN that the agency insisted on casting its net wide, looking at genetic causes and possible environmental causes. The experts felt that the agency shouldn't waste its time on those causes, which they said were highly unlikely, and instead should focus on a virus as the most likely reason behind AFM."

    - "Many of the CDC's outside medical consultants have long thought that a virus -- specifically an enterovirus-- was most likely at the root of AFM"
     
  5. Heartl

    Heartl Wife, mom, animal lover

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    Reno, NV
    Very interesting

    Also on the news a couple of days ago interviewed some parents who young children have died from this yet the CDC has not come out and said their were any deaths
     
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  6. wholepartthings

    wholepartthings

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  7. wholepartthings

    wholepartthings

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    https://www.mdedge.com/pediatricnew...sons-emerge-europes-first-enterovirus-related
     
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