Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Antibiotic treatment for chronic headache

Discussion in 'General Treatment' started by joe12, Jun 25, 2015.

  1. joe12

    joe12 Senior Member

    I have been suffering from a chronic headache disorder called new daily persistent headache, its been over six years of constant pain in the nasal and ophthalmic area, likely from some kind of nerve damage. The pain is very resistant to treatment. I tried to get antiviral treatment but the doctor refused without positive testing, which came back negative for zoster, epstein-barr, and citamegalovirus.

    In my case I think its due to some kind of inflammatory problem or infection. One of the resulting problems is the development of eye floaters without an obvious cause, they have increased recently and are starting to significantly interfere with my vision. I also have a lot of photophobia. One of the things that happened after the headache started was that I stopped generating purulent mucus on the nose, I developed hashimotos, and had a rheumatic fever mark on my neck.

    I would like to make a test with a good antibiotic combo/protocol that could get rid of difficult to treat bacteria. I cannot afford zyvox thou. I would like to have recommendations for this.
    rosie26 likes this.
  2. heapsreal

    heapsreal iherb 10% discount code OPA989,

    australia (brisbane)
    If you think its some sort of bacterial infection look into beg nasal spray which is an antibiotic combo spray which can help with resistant infections. I would also look at taking a broad spectrum oral abx like augmentin or bactrim.

    If its bacterial the above should have some effect?

    Be skeptical of being negative to those viral infections as many drs can just say they are a past infection but really they cant tell if its reactivating. Other immune tests and a clinical examination can give a clue and a treatment trial
    Of antivirals is the only way to know. If possible atleast get viral titres tested and nk function test, these can atleast give an idea if its possible they are reactivating .
    minkeygirl and sarah darwins like this.

    RCFSNP Nansy, CRNP

    Washington, DC
    Hi Joe, I am a nurse practitioner. I came down with CFS 7 months ago. So, it is easy to parse out which symptoms are caused by CFS: the constant frontal headache and the constant dripping nose are caused, Dr. Baraniuck explained, by the CFS; not an infection. As a participant in his study at Georgetown University I had time to ask him all my questions. So comforting to be able to talk to a leader in CFS research and get answers. Nansy
    rosie26 likes this.
  4. adreno

    adreno PR activist

    Are you sure it's not intracranial hypertension?
    rosie26 likes this.
  5. minkeygirl

    minkeygirl But I Look So Good.

    Left Coast
    @RCFSNP as a newbie to the ME/CFS community you will find many different answers to the same questions and different physicians who specialize in treating us will also have differing opinions.

    IMO, 20 plus years in, no one can be absolutely certain someone's symptoms are 100% because of their CFS and not any number of other things, including infections. Certainly not based on one study. There is a subset of patients, myself and @heapsreal (can't think of anyone else off the top of my head) that absolutely have a viral and infectious component to our disease which we treat with AVs and ABX.

    Hunt around the forum you'll be shocked out how many different issues people have and all the things we try in the hopes of getting symptom relief. There's a huge forum just on treatments.
    JaimeS and SDSue like this.
  6. Valentijn

    Valentijn Senior Member

    @joe12 - I got a chronic headache with my ME. If I take three grams of fish oil throughout the day (not fish liver oil), it stays away, starting about 24 hours after the first dose. When I forget to take it for a day or so, the headache comes back. The omega 3 fatty acids (DHA and EPA) in fish oil are supposed to work as an anti-inflammatory, so it might be worth a try for your headache.
    minkeygirl likes this.
  7. rosie26

    rosie26 Senior Member

    I had the annoying constant dripping nose in the mild years of ME and then things changed abruptly at severe onset.
    And I am sure I had that too. My skull was sore.

    I only started taking fish oils around my 8 year, it does help a bit. Better than nothing.
    Valentijn likes this.

See more popular forum discussions.

Share This Page