Discussion in 'Latest ME/CFS Research' started by Sasha, Jun 13, 2015.
Saw this on IiME FB:
I would very much like to read this!
It looks good, but not $33 good. I think I'll buy the book and do my own analysis.
My bad - I didn't read this properly and thought they meant the film! I've edited my title.
It's available direct from Invest in ME. Here's some info about it:
http://www.investinme.org/LostVoicesBook/IiME Lost Voices Comments.htm
and the order page:
I got confused too. For clarification, 'Lost Voices' is a book (made in association with Invest in ME). And not related to this thread, but the reason we're getting confused, 'Voices from the Shadows' is a film (also made in association with Invest in ME). The book and film are related in some way but I can't remember how exactly. I think the book was made before the film, and was the inspiration or precursor for the film.
I've just noticed that they managed to get funding from the NIAID for this study. But I can't imagine that it was an expensive study or large outlay for the NIAID, so perhaps it's a case of the NIAID paying lip service to ME? Or is it a sign of things to come (he asks with tongue firmly planted in cheek)?
I just read this. It's a sympathetic review of what the carers/caregivers said. There's no blaming of patients or carers/caregivers. (This isn't surprising given it comes from Leonard Jason's team).
I haven't read the original book so can't make a comparison.
You can also try a Google Site Search
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