Discussion in 'Latest ME/CFS Research' started by Ben H, Feb 21, 2017.
+1. Sounds exciting though.
I am donating what I can.
Does advocay have the potential to get the NIH to fund this project specifically and generously?
@Rose49 I found one sorry.
I am so incredibly thankful for all of Ron and his team's research and work. This brings me to tears on how far they have come and may actually find a cure soon. I feel there is a bit of hope for my bedridden 25 year old son suffering with me/cfs and all of the other sufferers and their families. I will be donating.
Thank you for being our angels in this crazy journey of illness and give us the light of hope!
Transcribing a video is much more energy intensive than I had envisioned I have nevertheless finished.
I am going to forward the transcript to Pat and Grigor now. If anyone else wants a copy, let me know.
EDIT: I've just realised I can actually just upload it here. Anyone can share or use this document however they wish. You do not need to ask my permission.
Thank you again to Ron and all the team... will donate again!
Thanks @Cheesus and I concur, it is a spoon-robbing exercise to transcribe or do any kind of mental exercise. Please call it a day and rest until tomorrow.
My spoons are all out - it was more my poor fingers and arms than my brain.
I will take your advice and shut myself down now. Going to lie quietly and meditate
This video is posted on OMF's facebook as well as the CFS research Center's and is facebook shareable/likeable from them!
"Serum" means blood, right?
Basically it's what's left after you take out the blood cells.
Thank you so much to Ron and everyone who is working so hard on this for us. So validating, inspiring and hopeful!
Just made another donation.
Funny how we are each slightly different in the symptoms we get. For me, my brain would complain long before my fingers and arms. And it would be worse if I tried to do cognitive work vertically as opposed to horizontal.
I would have agreed with you in the past, but last summer I started on low dose naltrexone. I was and still am completely bedridden, but with the LDN my mental stamina went from that of a very severe patient to that of a mild to moderate patient. However my physical stamina only improved a little bit.
So when I said I am going to lie down, I really meant figuratively, because I am actually still bedridden and so was already lying down
... I should really be resting.
This does sound very encouraging. Many thanks to Ron Davis for all of his hard work and dedication. And to Cheesus for typing up the transcript.
When I was younger I didnt want to confess that many things are about money but they are. :-(
Now I would marry an old billionaire to move ME research faster. Thanks for all your great job. We are following you also from middle of Europe with our small ME/CFS group - hoping that maybe some help will also come to this forgotten part of the world where nobody from medical community knows anything about ME/CFS. Greeting and sending some small money from Slovakia.
I have my questions in!
Thanks so much, again, to Ron and the whole team. I thought he looked overworked and tired - don't want him burning himself out and not being able to finish his work, or enjoy his own life. Please take care.
Please if you can, do this guys
Also would like to thank Ashley for her massive effort in making this video and all her work editing. Awesome stuff!
Wonder if topical or injections of ATP would work.
The marrying a billionaire is an excellent idea. LOL. I am now actively on the lookout! Meanwhile I have made a small donation. Xx
You can also try a Google Site Search
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