International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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An offer you can't refuse : Spoonseeker

Discussion in 'General ME/CFS News' started by Countrygirl, Jan 29, 2018.

  1. Countrygirl

    Countrygirl Senior Member

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    https://spoonseeker.com/2018/01/28/an-offer-you-cant-refuse/

    Click on the link for the fulll article

     
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  2. Countrygirl

    Countrygirl Senior Member

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    Here is Dr Nigel Speight's comment:

    Nigel Speight says:
    January 28, 2018 at 9:59 pm

    Of course the same applies with knobs on in the case of young people with ME. The parents naturally move heaven and earth trying to get a diagnosis and then “treatment”, often needing several “second opinions”.
    When the “treatment” doesn’t work or makes the young person worse the parents are blamed for withdrawing from treatment, which of course is “not acting in their child’s best interests”

    I have accumulated c 20 families in the last 5 years who have been taken to Case Conferences for alleged FII (Factitious and Induced Illness, previously Munchausen Syndrome by Proxy)

    Of course once social services have arranged a case conference they have to justify their actions so they have to put the child on the Child Protection register, and then of course you have to have a “protection plan” which the parents have to sign up to – it seems as if there is a kind of madness on the part of professionals, rather akin to the Spanish Inquisition (and with similar thin-lipped self-righteousness)

    Fortunately none of the above cases have succeeded, apart from a case that I lost in Norway, where a brother and sister were removed from their mother and placed in foster care, with mother only allowed to see them 3 times a year

    One message to the ME community – stop looking for “treatment”. If there was a cure we would have all have heard of it. Just ask for diagnosis, sympathy and support!

    And don’t complain about doctors or social workers unless you are in a very strong position – I have seen several cases of proceedings driven almost certainly by a desire for revenge on the part of professionals.
    I have written an abstract on these problems for our Paediatric College meeting in March but unfortunately it was rejected
     
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