Snookum96
Senior Member
- Messages
- 290
- Location
- Ontario, Canada
I saw it on an me Facebook groupAh, what I mean is, how was this survey promoted?
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
I saw it on an me Facebook groupAh, what I mean is, how was this survey promoted?
Everybody has OCD,....
It's the new "Of course it's a real illness. But..."Stopped reading there. :thumbdown:
At my CFS self-help group there are 3 psychologists who are vociferous in their condemnation of how some of their colleagues have psychologised our physical illness. In the UK there should be a professional body that is equally disgusted with how some of their members are abusing a whole patient population. In any other profession a group of idiots causing so much damage would have been called to account long ago.
Until psychologists put their house in order they'll get zero co-operation from me, including filling in their students' online questionnaires.
https://glyndwr.eu.qualtrics.com/jfe/form/SV_20qphvofps5v37f
Lucky us, having a undergraduate student let loose on a sensitive and easily misread area of medicine. What could possibly go wrong?
Just trying to think constructively for a minute, has anyone written a sort of "What psychology students should know about ME" type of piece? I know there are plenty of psychologists (is Dr Ellen Goudsmit one?) who disagree with the whole biopsychosocial take on MUS/ME etc. It would be great if there was a resource like that we could steer students towards, so they at least get a different perspective. Just wondering.
Re MEA link:
We are constantly being approached by university students to help with various aspects of research projects
We were approached by this psychology student some time ago
And while we decided not to endorse the research, or to get involved in any way, we did agree to let her insert contact details of the MEA in case anyone filling in the questionnaire wanted a reliable source of information and support
Maybe it's been done deliberatly to give the reader the "wrong" impression that the ME Association has endorsed the study. After all she did ask them and they said no.I'm sorry but I think it was inadvisable to do that, people may well think that as the MEA details are there, the MEA is endorsing this work, why should they think otherwise?
Hi Sarah, Leonard Jason, Professor of Clinical and Community Psychology at DePaul University, springs to mind as a reputable and much-published source, as although in USA, is of international relevance and renown and very approachable online. Here's an opinion piece he wrote for the London IIMEC in May this year - http://ldifme.org/an-inspiration-for-the-world/
Publications and education materials are on the Center for Community Research site under Myalgic Encephalomyelitis and Chronic Fatigue Syndrome - http://csh.depaul.edu/about/centers...lgic-encephalomyelitis-cfs/Pages/default.aspx
Thanks, Jo. Good to have Prof Jason mentioned here, lest any students happen by, but I can't see anything there that would catch the eye of a psych student looking for briefing notes on a condition from a psych perspective.
If @charles shepherd is still following this thread, would Dr Ellen Goudsmit consider writing a piece like that? She would seem ideal, given her biography: http://www.meassociation.org.uk/2009/11/dr-ellen-goudsmit-joins-me-association-panel-of-advisers/
As a fellow of the BPS she would carry weight with UK students. Somebody needs to put the other side of 'the role of psychology in me/cfs' directly to students, I feel. Seems like they're only getting one point of view. A made-to-measure primer would be a useful tool.
I don't think Ellen takes part in this group - so I've sent her a link to the discussion to see if she might be interested in following up your suggestion and writing something aimed at psychology students