The logical part of me knows that ME is an extremely complex disease that has little to no hope for recovery currently. Having read hundreds of papers, articles and accounts i'm extremely doubtful that I will ever get better, however...
Recently my friends/family have said that I seem to be making improvements. I haven't had PEM or crashed/relapsed significantly in the past 2 ish months, I also managed to do the following in in the past few weeks:
- Play 9 holes of golf.
- Go to London for 2 busy days of meetings.
- Go on a few nights out where I drank lots and got in at 3-4am ish.
- Go for a few meals/to a few social events.
This all sounds awesome, but it wasn't simple. I had to be extremely careful, getting a lot of taxis in London, chugging high sugar electrolyte drinks between each hole while playing golf etc...the nights out I can't explain, I do well on alcohol for some reason (high sugar, vasodilator, b-cell suppressor, acetate fueling the brain, who knows)?
In relative terms it is still a HUGE reduction in activity for my age. I still can't work because any intense mental exertion which involves learning/processing new information seems to leave me exhausted...writing new threads like this one makes my brain hurt a bit. I also can't go to the gym unless I just do light stretching. I don't do much through the day other than rest, listen to music, go for short walks and try to keep my mind occupied.
My onset was relatively gradual until November 2016 when I had a major relapse at the gym leaving me unable to work.
I have a feeling this illness for me is mainly linked to sugar/glucose metabolism and circulation (I also have POTS).
Any input is greatly appreciated.
Recently my friends/family have said that I seem to be making improvements. I haven't had PEM or crashed/relapsed significantly in the past 2 ish months, I also managed to do the following in in the past few weeks:
- Play 9 holes of golf.
- Go to London for 2 busy days of meetings.
- Go on a few nights out where I drank lots and got in at 3-4am ish.
- Go for a few meals/to a few social events.
This all sounds awesome, but it wasn't simple. I had to be extremely careful, getting a lot of taxis in London, chugging high sugar electrolyte drinks between each hole while playing golf etc...the nights out I can't explain, I do well on alcohol for some reason (high sugar, vasodilator, b-cell suppressor, acetate fueling the brain, who knows)?
In relative terms it is still a HUGE reduction in activity for my age. I still can't work because any intense mental exertion which involves learning/processing new information seems to leave me exhausted...writing new threads like this one makes my brain hurt a bit. I also can't go to the gym unless I just do light stretching. I don't do much through the day other than rest, listen to music, go for short walks and try to keep my mind occupied.
My onset was relatively gradual until November 2016 when I had a major relapse at the gym leaving me unable to work.
I have a feeling this illness for me is mainly linked to sugar/glucose metabolism and circulation (I also have POTS).
Any input is greatly appreciated.
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