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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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alinia--anyone tried it? stories?

xrayspex

xrayspex

Senior Member
Messages
1,111
Location
u.s.a.
I have some but been putting off using it. just enough for 3 days. MCS so not sure how will react, can't afford to flare up more right now.
 
K

kgg12003

Messages
18
My young adult son, who has tick born diseases, took a 14 day course of Alinia. It hit him hard. But it seems he is med sensitive and dose sensitive. He too has MCS, although he has improved with antibiotic therapy.
 
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