Tom Kindlon
Senior Member
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Pursuing the FOIA cost me much in time and energy. When combined with other factors such as physical over-exertion and sleep deprivation, it eventually contributed to a severe relapse.
Having seen the impressive care put into the document on What Do They Know, this doesn't surprise me at all. It might not have gained much readership, but it was some of the best writing on PACE I've seen. Hoping for a speedy return to health for him!
https://www.whatdotheyknow.comYou've lost me... What is 'What do they know?'
A site to help anyone submit a Freedom of Information request. WhatDoTheyKnow also publishes and archives requests and responses, building a massive archive of information.
You've lost me... What is 'What do they know?'