Kati
Patient in training
- Messages
- 5,497
I have spent more time lately doing advocacy work lately, notably aimed at the Canadian government.
I have little response from them despite sending letters to health minister, public health agency, the national health research body, my own MP and else.
What I wonder today is, what is effective and what is not effective in doing advocacy campaigns?
Is social media helpful even though I don't get answers?
What angle should be explored?
Stigma and discrimination compared to other diseases?
Numbers of patients sick?
ME being more prominently a woman's disease?
How do you address ME not belonging to any medical specialty?
I think that at this time, a little strategy could help. I will consult with a patient advocacy organization that I have in mind but I thought I'd ask the experts over here.
Thanks !
I have little response from them despite sending letters to health minister, public health agency, the national health research body, my own MP and else.
What I wonder today is, what is effective and what is not effective in doing advocacy campaigns?
Is social media helpful even though I don't get answers?
What angle should be explored?
Stigma and discrimination compared to other diseases?
Numbers of patients sick?
ME being more prominently a woman's disease?
How do you address ME not belonging to any medical specialty?
I think that at this time, a little strategy could help. I will consult with a patient advocacy organization that I have in mind but I thought I'd ask the experts over here.
Thanks !