Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Action for ME pulls their funding of Esther Crawley's research into severe ME

Discussion in 'General ME/CFS News' started by Countrygirl, Jan 11, 2018.

  1. Countrygirl

    Countrygirl Senior Member

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    Interesting development here. ;)

    It might be interesting to know the real reason.

    Prof Crawley informs paediatricians that 'severe illness is not on the ME spectrum' and it is re-diagnosed as PRS/PAWS. PEM has even been included in the diagnostic guidelines for PRS. It is very tempting to wonder if this new definition of PRS is perhaps providing very useful in protecting doctors who have made their patients much more ill through enforced exercise therapy. :rolleyes:

     
  2. hixxy

    hixxy Senior Member

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    £6,000 is really not very much money and shouldn't be hard for the researchers to replace. When I saw the title of the post I was hoping this would be a bigger blow. Hopefully this is a permanent arrangement of not funding their team or any other BPS teams.
     
  3. boombachi

    boombachi Senior Member

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    Hampshire, UK
    Action for ME are far too diplomatic to give us the real reason but a number of important organisations seem to be politely distancing themselves from EC. Me research uk and Julia Newton have left the cmrc in the last year. It may only be £6000 but contributing to research signifies support.

    Maybe EC just found a better deal and generously gave it back. We will probably never know. In the absence of accurate information, I will comfort myself with the fantasy that Action for ME has finally come to its sensesnabout EC.
     

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