Despite Our Losses, People with ME/CFS Want More
We've been cheated by ME/CFS and we all know it. That's a no-brainer, if you'll pardon the cognitive pun. And loss didn't just result from the bad things that befell us. It also encompasses the good things that just ... never came. The absence of bounty. Of wholeness. Of peace.
Discuss the article on the Forums.

AABB Statement on XMRV Task Force

Discussion in 'XMRV Testing, Treatment and Transmission' started by Lesley, Feb 19, 2010.

  1. Lesley

    Lesley Senior Member

    Southeastern US
    I just saw this from the CAA via Facebook. This is the blood supply task force.

    AABB Statement on XMRV Task Force

    February 17, 2010

    AABB recently convened an Interorganizational Task Force on Xenotropic Murine Leukemia Virus-Related Virus (XMRV). The Task Force is charged with reviewing the available data on the potential transmission of XMRV through blood transfusion, making recommendations for further action to assess the risk of transmission and developing appropriate messages for donors, recipients, and the public. The Task Force includes representatives from the blood community, patient advocacy representatives, XMRV subject matter experts and liaisons from several government agencies, including the Office of the Assistant Secretary for Health, the Centers for Disease Control and Prevention, and the Food and Drug Administration. Dr. Harvey Klein, Chief of the Department of Transfusion Medicine, National Institutes of Health Clinical Center, serves as the task force chair.

    Currently there are insufficient data about the potential transmissibility of XMRV through blood transfusion or the relationship of the virus to any disease or syndrome. Background information about XMRV and its characteristics that specifically relate to potential transfusion transmissibility can be found in the AABB XMRV Fact Sheet, published by the Transfusion Transmitted Diseases (TTD) Committee in January 2010. This fact sheet is an addition to the 68 fact sheets on emerging infectious disease agents prepared by the TTD Committee and published in the August 2009 Supplement to Transfusion.

    The Task Force will examine new data concerning the potential transmission of this virus as they become available in the next months and update information contained in the fact sheet as necessary. At present, there are no specific recommendations regarding deferral of individuals with diseases or syndromes that have been linked to XMRV, although such donors would be deferred if, on the day of donation, they respond negatively to the question, Are you feeling well today?
  2. gracenote

    gracenote All shall be well . . .

    Santa Rosa, CA
    Here is a link to the Fact Sheet.

    AABB XMRV Fact Sheet
  3. There are an awful lot of "unknowns" on the fact sheet. Kinda disturbing. Hopefully these will get filled in with real answers over time.
  4. Countrygirl

    Countrygirl Senior Member

  5. oerganix

    oerganix Senior Member

    Has anyone heard anything regarding those patients of Dr Peterson? He said he had some (two?) who got CFS after a blood transfusion and that the donors had been found. Just wondering whether there is any info on that...
  6. Dr. Yes

    Dr. Yes Shame on You

    Anyone else find that grimly hilarious? :D :worried: :confused:
  7. Kati

    Kati Patient in training

    Grimly hilarious Dr Yes.:confused::eek::(:Retro mad::worried::ashamed::Sign Help:
  8. Abraxas

    Abraxas Senior Member


  9. VillageLife

    VillageLife Senior Member

    United Kingdom
    Can someone post this link on the WPI discussion board.

    Also one very positive thing I noticed on the xmrv fact sheet is it says if xmrv is found to have a relationship with cfs and prostrate cancer, then the symptoms of xmrv will be chronic fatigue syndrome and postruate cancer. That's quite a powerful statement! It then lists the cfs symptoms!!
  10. Esther12

    Esther12 Senior Member

    Sounds like they've not found anyone who's backing up the WPI's research yet.

    Presumably they'd be in contact with researchers, rather than just going off the UK studies? Considering the danger of getting it wrong, they sound pretty confident it's okay for CFS patients to give blood. Surely they wouldn't put a statement like that out if they thought further resarch would be out in the next year saying CFS is caused by a retrovirus that could be transmited through the blood supply.
  11. dannybex

    dannybex Senior Member

    Cheney's comments...

    Of course no one knows for sure, but Cheney doesn't seem to think XMRV is highly infective:

    (from the Cheney-Mikovits interview)

    "One of the things that interested me was the potential infection rate in the country of 3.8% which rounds out to about 10 million Americans who may be infected but are not sick compared to lets say 1 million CFS patients who are infected and lets say disabled, suggesting that the majority of people, maybe even as much as 90% of people that become infected do not get CFS, although they actually may be infected with XMRV. That being said, then that could make the relative infectiousness of this sort-of subterranean in that it could be transmitted but since its not causing disease, or apparent disease anyway in the great majority of those infected, its hard to evaluate the infectiousness of this based upon watching an isolated case and those around them. On the other hand it also suggests that if only 10 million Americans are infected after goodness maybe decades of presence that this must not be a terribly-infectious agent.

    If it were, wed see a lot more than 10 million Americans infected with it, so there must be something thats inhibiting the effective transmission of that agent given those numbers. Ten million versus lets say one million. And also many people infected simply dont get sick. At least they dont get sick with CFS."

See more popular forum discussions.

Share This Page