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A Senator Responds to a CFS Letter

Discussion in 'Action Alerts and Advocacy' started by ballard, Aug 14, 2010.

  1. ballard

    ballard Senior Member

    Hi All,
    I have been writing our congressional delegation regarding concerns about XMRV being in the blood supply. Here is my letter:

    "A recently discovered human retrovirus, similar to HIV may be infecting our blood supply. This virus may cause prostate cancer, the neuroimmune disease ME/CFS, and other serious diseases.

    At this time the U.S. blood supply is not being screened for XMRV. Canada, Australia and New Zealand do not allow blood donations from people with ME/CFS. At present, individuals with ME/CFS are free to donate blood to the U.S. blood supply if they feel well enough.

    Act now and bar individuals with ME/CFS from donating blood. Remember that this is your watch. It is far better to be safe than sorry."

    Here is Senator Cantwell's reply: (Senator Maria Cantwell is from Washington State)

    " Thank you for contacting me regarding blood donations that could contain XMRV. I appreciate hearing from you.

    I fully understand your concerns and appreciate the time you have taken to bring this to my attention. I have contacted the Food and Drug Administration on your behalf and brought your situation to the attention of the appropriate individual. I have asked the agency to review your letter and provide you with a written reply addressing your concerns. In the meantime, if you feel that I can be of assistance in any other way, please let me know."

    I have been writing to legislators about CFS for 16 years. This is the first time I have received more than a form letter in return. Makes me think that something is going on.
    I suspect that I am not the only one writing legislators about the blood supply. Maybe XMRV and CFS are starting to be on the Congressional radar!:D

    If I don't hear from the FDA in the next couple of weeks, I will contact Senator Cantwell's office again.
  2. V99


    Thanks for posting this ballard. It's fantastic to get a response. Keep pushing for answers, we need this.
  3. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    Yeah that is a fantastic response.
  4. tymewarp#9


    Central California
    Right On, Ballard; ThankYou for doing what is so difficult for so many of us.. THANKYOU!

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