TheMoonIsBlue
Senior Member
- Messages
- 442
I was thinking about the Co-Cure site for good ME/CFS doctors, which is a good list but does need updating..........but I was also thinking, how about a "Good Doctor" list from Phoenix Rising members?
There could be a lot of doctors out there people are finding helpful for their ME/CFS......doctors who atleast are interested, are "believers", keep up with research, are willing to try new treatment and try medications off label.
I know not everyone will want to share who their doctor is which I totally understand for privacy reason. But if you do, or if you have heard of a doctor who is open to accepting ME/CFS patients, how about starting a list? And maybe add a few lines about what the doctor is doing for ME/CFS, how you or others have found them helpful, etc.
Just an idea
There could be a lot of doctors out there people are finding helpful for their ME/CFS......doctors who atleast are interested, are "believers", keep up with research, are willing to try new treatment and try medications off label.
I know not everyone will want to share who their doctor is which I totally understand for privacy reason. But if you do, or if you have heard of a doctor who is open to accepting ME/CFS patients, how about starting a list? And maybe add a few lines about what the doctor is doing for ME/CFS, how you or others have found them helpful, etc.
Just an idea