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Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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80% of cases are still undiagnosed... Reference?

Discussion in 'General ME/CFS News' started by Kati, Mar 4, 2015.

  1. Kati

    Kati Patient in training

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    hi I am looking for the scientific reference on 80%of the patients with ME/CFS are still undiagnosed. Anyone can help me?
     
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  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    yes, the CDC mentions 80% and Jason has one or more studies, one of which found 90%. Just a sec....

    Ok, Reyes:
    http://archinte.jamanetwork.com/article.aspx?articleid=215827
    Pretty sure that's (raw number [percent]). And refers to before having enrolled in the study.

    Jason 2009:
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3021257/
     
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  3. Kati

    Kati Patient in training

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    CantThink, WillowJ and oceiv like this.
  4. Iquitos

    Iquitos Senior Member

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    I could be wrong, haven't looked for it, but I seem to remember Dr. Klimas reporting that about 84% of ME/CFS sufferers have probably not been diagnosed.
     
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