August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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12th Invest in ME International ME Conference 2017 registration is open

Discussion in 'Upcoming ME/CFS Events' started by AndyPR, Oct 11, 2016.

  1. Tilney

    Tilney

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    Would it be better to start a new thread in Members only headed?


    PR Members going to liME on 2nd June

    We could then see who else from PR is going & perhaps we can work out how to identify ourselves to each other?
     
    Theodore, Jo Best, Mark and 2 others like this.
  2. slysaint

    slysaint Senior Member

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    upload_2017-4-13_10-17-10.png

    print and make a badge?
     
    Mark, Valentijn, MEMum and 1 other person like this.
  3. MEMum

    MEMum Senior Member

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    Sorry, I can't work out how to make a new post Members only! Can @AndyPR , @Kina ...someone more tech than me do this?
    Thanks
     
  4. AndyPR

    AndyPR Senior Member

    Just post in any of the Community sub-forums. I'd suggest Community Lounge or Members Only ME/CFS Discussion as the obvious ones.
     
    MEMum likes this.
  5. Undisclosed

    Undisclosed

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  6. AndyPR

    AndyPR Senior Member

  7. Undisclosed

    Undisclosed

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    All the forums in the Community section are members only. You can see what forums are members only if you log out and see what disappears on the forum list.
     
    AndyPR and MEMum like this.
  8. MEMum

    MEMum Senior Member

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    Thanks @Kina and @AndyPR , my tech skills increasing in mini steps. Thread now up.

    I may well start another one on the 12 May protest: people going and ideas for placards/info etc. Waiting to hear back from LA.
     
    slysaint, Undisclosed and AndyPR like this.
  9. JaimeS

    JaimeS Senior Member

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    Silicon Valley, CA
    The wavering on our feet, the wheelchairs, the exhausted slump... ;)
     
    Sing, jpcv, Valentijn and 5 others like this.
  10. AndyPR

    AndyPR Senior Member

    Don't forget the expensive clothes and assorted bling that we can afford due to all that sweet chronic illness cash that we get. ;)
     
    RL_sparky, emsho, jpcv and 7 others like this.
  11. slysaint

    slysaint Senior Member

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    pencils up the nose?
     
    SamanthaJ likes this.
  12. SamanthaJ

    SamanthaJ Senior Member

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    And underpants on head?
    ETA: I hope we're both referring to Blackadder or my comment's going to look weird...
     
    Last edited: Apr 14, 2017
    MEMum and slysaint like this.
  13. PeeWee

    PeeWee

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    We'll be there - are the head decorations mandatory?
     
  14. emsho

    emsho

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    Scotland
    Hey @Jo Best and @AndyPR (sorry) just because in threads you always seem a fount of knowledge and if Jo's not the right person to ask you might know who to direct this question to!

    Do you know how Invest in M.E invites guests? Do they rely on people like us getting in contact? If so can I send an invitation to some researchers at Edinburgh university? Or email the medical societies? If not is there someone we could contact to request they send invites? It's such a great event would love to try and get the word out to some Scottish researchers/students to attend :)
     
    MEMum, slysaint, Jo Best and 2 others like this.
  15. RL_sparky

    RL_sparky Senior Member

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    @Jo Best . Is IIME planning on selling conference DVDs again this year? I can't seem to find any info on this.
    Thanks
     
    Jo Best likes this.
  16. AndyPR

    AndyPR Senior Member

    Lol, I just spend too much of my time in front of my computer, logged into PR ;)

    Have you found the Invest in ME Facebook group yet? https://www.facebook.com/groups/5804522506/ That may be the best place to ask the question, or the contact details for the charity are here, http://investinme.org/contactus.shtml
     
    emsho, RL_sparky and trishrhymes like this.
  17. Jo Best

    Jo Best Senior Member

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    They welcome contact from researchers, so I think the options are for you to contact researchers you'd like to inform of the opportunity so that they could then contact the charity if they're interested; and/or contact the charity yourself.
    This is the page about the colloquium:
    http://investinme.eu/BRMEC Colloquiums.shtml

    On that page is a 'Contact Us' button that takes you here: http://investinme.eu/BRMEC Colloquiums.shtml#ContactUs

    Hope this helps :)
     
    emsho and AndyPR like this.
  18. Jo Best

    Jo Best Senior Member

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    I don't think they've made any announcement about that yet, but expect they plan to produce a DVD as usual.
     
  19. jpcv

    jpcv Senior Member

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    SE coast, Brazil
    I would buy one, for sure
     
    Jo Best likes this.
  20. Gingergrrl

    Gingergrrl Senior Member

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    If a forum is "Members Only" does that mean that the threads inside of that forum would never appear in any Google or internet search done by a non-member? Sorry if the answer is obvious but I want to be certain before posting about something there in the future.
     
    MEMum likes this.

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