Table of Contents The National ME/FM Action Network ……………………………………………… i About the Contributors .………………..…………………………………………..…. iii Introduction to First Edition …………………………………………………………. v Mary Ellen, Chairperson, TEACH-ME Task Force Introduction to Second Edition ................................................................... vii Margaret Parlor Chapter 1: Understanding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in Young People ……..…………….… 1 Marjorie van de Sande & Dr. Bruce M. Carruthers Chapter 2: Understanding Fibromyalgia Syndrome (FMS) in Young People …………………………………………………………………….… 17 Marjorie van de Sande & Dr. Bruce M. Carruthers Chapter 3: Medical Aspects of ME/CFS and/or FMS ………………………….. 30 Dr. David S. Bell & Mary Z. Robinson Chapter 4: 'I Look So Normal': Impact of ME/CFS and/or FMS on Children …………………………………… 36 Kate Andersen Chapter 5: Educational Planning and Approaches to Curriculum …………. 63 Teach-Me Task Force with Kate Andersen Chapter 6: Role of the Student and Family in Educational Planning ……… 97 Kate Andersen & Mary Z. Robinson Appendices ………………………………………………………………....……………. 104 Order Form for TEACH-ME: Sourcebook, and Membership Application are at the end of book. Citation: TEACH-ME Task Force. A Sourcebook for Teachers of Young People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FMS). Second Edition, 2005. National ME/FM Action Network, Nepean, Ontario. Reprinted April 2012 © Copyright: Second Edition 2005 © Copyright: First Edition 2002 National ME/FM Action Network 512-33 Banner Road, Nepean, Ontario K2H 8V7 Canada Phone: 613-829-6667 Fax: 613-829-8518 Email:
mefminfo@mefmaction.com
