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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Mayna

    Do you have these symptoms ?

    Hi, I tried a drug called tetrazepam and it improved my symptoms of stiffness of the neck. But it has a sedative side effect so i only take it before going to bed.. Dmitri have you ever tried something similar ? It's not miraculous but it helps a bit
  2. Mayna

    Do you have these symptoms ?

    have you try something to relax the muscles?
  3. Mayna

    Do you have these symptoms ?

    Hi Dmitri, No, I don't have any headache. What you experience is tension headache, am I right ? I have read this is due to an important tension in the neck muscles... My neck tenses up every time , particularly when i am motionless. At this moment it is more difficult to rotate my neck. ( I...
  4. Mayna

    Do you have these symptoms ?

    Does anyone feel the muscles of their neck tensing up against their will? ( like a constant tension ? ) I wonder if every body feeling tired inevitably feels a tension in neck ? :thumbdown: (it is unbearable, i can't focus with that) Thank you... :)
  5. Mayna

    Do you have these symptoms ?

    I think you have fever when you have a flu , and aches ? I never had flu...... I was given Laroxyl against the pounding in head, has anyone tried it?
  6. Mayna

    Do you have these symptoms ?

    Hi So i went to an osteopath. He said that the pounding in head are linked to the fatigue, because I try harder to focus and the muscles are tense. Idk. He also tested me with an oligoscan (i had never seen it before, it is a device to see if you're intoxicated with heavy metals ...
  7. Mayna

    Do you have these symptoms ?

    MeSci I'm definitly reading it , thanks - hope it's not too long hahah :) Dmitri : the poundings are in my neck, and in back of my head, like a line between the ears. leela : Unfortunatly I don't live near Grenoble! I'm seeing an osteopath tommorrow though, had an appointment really fast...
  8. Mayna

    Do you have these symptoms ?

    Thank you , :). I didn't know there was other criteria exept the fukuda ones! So I think i will just try to ease the peripheric symptoms , like pounding in head+the tension in neck but I don't know if it is possible, i feel it just arrived with the fatigue. leela: Yes your are right I am...
  9. Mayna

    Do you have these symptoms ?

    OK! Thank you verymuch (merci beaucoup), i will ask to be tested for that!
  10. Mayna

    Do you have these symptoms ?

    @Valentjin: Idk, I remember going in a mall and feeling so weak, but the malaise was right away, not after h24.. leela and maryb : Here in France it is pretty affordable to consult a doctor (because of social security), but none will really search very much once you have a chronic fatigue...
  11. Mayna

    Do you have these symptoms ?

    Thank you all for answering! Concerning the ebv issue, the tests say that I don't have an acute infection, but an old one. And no CMV, toxoplasmosis... Could a reactivation cause this? The only thing is a big pounding and tension in neck , almost unbearable (but the IRM of the neck showed...
  12. Mayna

    Do you have these symptoms ?

    (PS: I tested for Lyme, EBV, Thyroid , iron , and had a cerebral irm)
  13. Mayna

    Do you have these symptoms ?

    Hi, In December the 1st of 2012 , I felt heartbeats in my head and a sudden extreme fatigue. The same day, I had a cold which lasted 3days My fatigue and pounding in head never went away eversince, and I also feel a tension in my neck ( as if it was stiff).. Now , I'm so tired i had to...