• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. rosebud

    B-12 - The Hidden Story

    bad reaction to SAME Fredd, Thanks for all the information you have given. You have done an amazing amount of research and I'm sure have spent onerous amounts of time getting answers. When I was diagnosed with fibromyalgia in 1990 I did the same thing, even writing a book which is still...
  2. rosebud

    new article on PNI (psychoneuroimmunology)

    Happy water There is a doctor from Japan who has some fascinating research on how our thougths can change the cells of water, with pictures on his website, he has a very good book on it as well! If I were better at all this forum stuff i could put in the website address, but I haven't figured...
  3. rosebud

    Infrared Saunas

    Oops forgot about size and portability I purchased the professional size, and it is rather heavy. I suppose the smaller one would be fine. Rosebud
  4. rosebud

    Infrared Saunas

    My bio mat arrived today! HI all, My bio mat arrived today -- i purchased the professional size and i used it tonight for the first time-- I felt so good I think i actually fell asleep and didn't want to get off of it. The instructions say to go slow, though -- i eventually want to sleep on...
  5. rosebud

    Dr. Chia Produces New Form of Oxymatrine

    ordering oxymatrine Hi all, I ordered oxymatrine from a site listed on a thread somewhere on your forum. It wasn't expensive -- it is called "white tiger" and distributed in us by a portland, oregon outfit. Didn't need a prescription or a doc-- don't know the quality though Rosebud
  6. rosebud

    valcyte, nexavir, gamma globulin, cholestyramine

    cholestyraimine/nexavir/methyl b12/update feeling better Hi all, Just wanted to update you on my progress with nexavir injections, and cholestyramine. After I stopped the cholestyramine about a month ago I started it up again. I started to feel really good - better than i have in two...
  7. rosebud

    proamatine for orthostatic hypotension

    licorice is also helpful , as it raises blood pressure - i use it to, just one of the tinctures,, tastes good. I seem to need both. Licorice is also helpful for the adrenals rosebud
  8. rosebud

    has anyone heard of zeolite for detox?

    A native american energy healer gave me some zeolite made from volcanic ash, i believe.-- supposedly it detoxes heavy metals without side effects -- one of the companies selling it, although it is multi- level marketing -- has some infor on it --Walora is the name rosebud
  9. rosebud

    Infrared Saunas

    Does anyone else have a biomat-- i tried one at a conference yeaterday and it felt sooo wonderful? am thinking about getting one--where do you find them used? rosebud
  10. rosebud

    proamatine for orthostatic hypotension

    midodrine/side effects/ sea salt/water Hi all: I appreciate your comments re midodrine, I have been on it for years -- it really helps, I do feel some funny prickly feelings when I sit down or lay down -- the reason you may feel like your going to explode is that it works by constricting your...
  11. rosebud

    "Just Four Quid" fundraising methods for ME/CFS research apply everywhere - join in!

    I too, believe we need more research funding and if everyone contributes 4 quid ( i don't know how much that is but it doesn't sound like a lot) just think what could be done! A few board members from KIm O'Leary's organization , a few patients and I are forming an initiative in Chicago...
  12. rosebud

    New article on Psychoneuroimmunology

    Jody, Jody, Jody, You are exactly the right personality to do what you are doing!:)I read your blog and it is great--- but psychoneuroimmunology is not way out there ---- it is real --- just a fancy name for the fact that our bodies, minds and spirits are all connected. I don't know if you...
  13. rosebud

    CFIDS Association & advocacy

    kim Mccleary Cort - wonderful piece of writing! I applaud your words. I have been through all this "backbiting" in my many years with the FM community --I know Kim through FM and now through CFS -- I can't beleieve she is the wicked person portrayed. Until the pharmaceutical cos get involved --...
  14. rosebud

    Rewiring the Brain

    jody, yes it sounds like emdr - did it work for him?
  15. rosebud

    Energetic Healing and Epigenetics

    Robin, Reiki certainly can be helpful in calming you down, I have training in Reiki and Healing Touch, I do go when I can foro treeatments, Just went to a workshop with a healer from phoenix who had a near death experience and came back with healing abilities, it was a wonderful day . We...
  16. rosebud

    Rewiring the Brain

    brain rewiring I wonder if this is the Dr my chiropractor told me about - he said he (Doige)uses EMDR, (eye movement desensitization reprogramming) as one of the therapies- therapists(psychologists) have been using this for helping people with PTSD and it was quite controversial years ago -...
  17. rosebud

    Milnapricin For ME/CFS: more than an antidepressant

    I take clonazepam(klonopin- 5 mg at nite ) -- for years -- this was given to me for fibromyalgia and after I had a sleep study - by a psychiatrist who is a sleep specialist and knows about fibro and cfids I take st johns wort- only 1 a day when i am feeling really fatigued and down and it...
  18. rosebud

    Energetic Healing and Epigenetics

    My god! We've all read the same books--- I've seen Eric Pearl work, read Bruce Lipton 3 times, the secret, all of the above -- I am certified in Reiki and Healing Touch - I have a friend who goes to John of God in Brazil and says that miraculous healings take place there-- Spirituality ...
  19. rosebud

    Bemer 3000

    Hi all, just a note on your notes on touch, sounds, lights-- people with fibromyalgia have the same problem - touch can be excruciating, lights,smells and sounds bother many as well. rosebud
  20. rosebud

    Milnapricin For ME/CFS: more than an antidepressant

    have you tried st johns wort? may have the same effect as this rosebud
  21. rosebud

    Propanodol in ME/CFS

    My doctor tried that for me, but I found that coreg another beta blocker works better - rosebud
  22. rosebud

    proamatine for orthostatic hypotension

    Since I am new to this site, i thought I might inquire as to how many of you have orthostatic intolerance(inability to stand upright a long time, feeling a need to sit down, laying down makes you feel better, heat makes you worse, craving salt. I have Postural orthostatic hypotension and know...
  23. rosebud

    R U Amygdalized?

    Just wanted to follow up on all of the above thoughts -- I am a psychotherapist and use hypnosis and cognitive behavioral therapy( a basis of guptas program -- and used imagery and relaxation to rid myself of fibromyalgia PLus meds and supplements and not overdoing. The universe gives us many...
  24. rosebud

    The Neural Reprogramming Game

    breathing through the heart/amygdala retraining Jody: Did you go to the section in the heart math website on the science of the heart? One of the things it mentions is that the heart has a direct link to the amygdala as well as other organs and produces its own hormones which affect all...
  25. rosebud

    The Neural Reprogramming Game

    amygdala retraining Cort, I have read your accounts of using the "brain retraining" and would like to let you know about the heart math institute that has done a lot of research on calming down the nervous system by focusing on breathing into the heart( as the heart has its own brain...
  26. rosebud

    valcyte, nexavir, gamma globulin, cholestyramine

    I felt ok on the cholestyramine(hereafter referred to as CSM), the first week and then on the 4th week had a bad reaction and stopped it for a week or so. Started it up again at a lowere dose. I have been on Nexavir for about a month and hate to jinx myself by saying that I do feel more...
  27. rosebud

    valcyte, nexavir, gamma globulin, cholestyramine

    Hi KC22: I have not had my ebv titers tested since the end of april - so I don't know if they have gone down or not As for the mold test -- a physician in chicago who is interested in Dr. Shoemakers protocals for treating neurotoxins (www.chronicneurotoxins.com) did a number of tests...
  28. rosebud

    valcyte, nexavir, gamma globulin, cholestyramine

    Hi all, I am new to your site. I thought you might be interested to know that I have had EBV, CMV and HHV-6 for over a decade with flares and remissions, living a fairly "normal" life by using transfer factor, valtrex, and many other supplements. Three years ago I took a new job in a...
  29. rosebud

    rosebud

    • rosebud
    • Blog
    • Blog entries: 1
  30. rosebud

    rosebud's journey

    Hi all, I am new to your group and am very impressed with the PWC's who post on this forum. I was diagnosed with fibromyalgia in 1990, but in looking back, I also had MCS's, cognitive dysfunction and many symptoms, except fatigue I eventually got involved with the fibro community and have...