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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. louabird

    New symptom

    I've been feeling 'weird' to put it lightly for a couple of days. I don't recall ever having this. I started off having strange waves of heat/nausea/dizziness that felt like electrodes were pulsing through my brain. Almost like my vision was sliding away, without the visualisation... just the...
  2. louabird

    Confused about treatment options

    Thanks! I'm booked in/on the waiting list for CFS Discovery. Thank you all for the invaluable info x
  3. louabird

    Confused about treatment options

    Thanks a bunch, I'll look into it x
  4. louabird

    Confused about treatment options

    Lovely! Thank you x
  5. louabird

    Confused about treatment options

    You can see my symptom list here: http://forums.phoenixrising.me/index.php?threads/symptomatic-me-since-2008.21142/#post-321704
  6. louabird

    Confused about treatment options

    So, I've had MECFS for almost 4 years. I have been super reluctant to try GET and CBT but have tried powder magnesium which worked for the pain, for a bit. Melatonin, magnesium supplements, B12 (which made me super tired) and have taken some naturopath paths. I'm currently at a stage where...
  7. louabird

    Dr. Chia's treatments

    Has anyone traveled to see Dr. Chia from international waters? His approach to CFS seems to be the most logical, targeting the virus dwelling in the body, rather than medicating the symptoms. x
  8. louabird

    New ME/CFS clinic in Melbourne Australia

    It would be good to get feedback on Dr Oldmeadow himself. I have been a patient of his and have been thoroughly unsatisfied. I think why its all bulkbilled is because he doesn't actually do any diagnostic testing. He is a firm believer in GET and CBT.