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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Clarification on Fredd protocol please

    First have some niacin on hand. The 3 or 4 times that I needed it, I opened a capsule and put some under my tongue. Every time it was related to the amount of mfolate I was taking and not the mB12 - but that's just me. Signs that I needed it was a heavy fog, irritability and a darkening of...
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    A B2 story

    @howirecovered For me, the hardest part of this illness has always been the brain-fog. Clarity of mind....I miss it so much. The LCF has helped. Freddd has suggested that I look at mB12 doses and that might help too. As I sit here now at 4:30 a.m. - I can't access my supplies because my wife is...
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    A B2 story

    I am pushing my Drs comfort level with my injections now. I am taking 1000 mcg s.c. in the morning and then 500 more in the afternoon. I don't have access to the concentrated formula that you have - mine is 1 mg/1 ml. I'm guessing that the carbon to cobalt are pretty stable and the cobalt...
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    A B2 story

    @Freddd Just giving you an update. As you might have predicted, I have indicators the the nervous system is "awakening". The 2 main ones are pain which started in my ribcage in my back but is more generalized now. The quality of discomfort has morphed somewhat and now feels pretty much...
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    A B2 story

    @minkeygirl I had to register again and I have lost the ability to continue our conversation. brad
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    Poll: Freddd's B-12 Treatment Plan

    I just cast my vote as "remission". I would say that I am just squeaking in at the 80% recovered. I'm not finished. @trollo You brought this to this thread. "Then when I got a bit comfortable with the adb12 titration, I added Acetyl L Carnitine to the protocol(ALCAR). ALCAR totally blew me...
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    A B2 story

    @Freddd Just a bit of an update. I am doing better and am taking LCF 500 mg/twice daily. Fog has been improved and further responded to ALA 100 mg that I take at bedtime since the initial response is an increased fog (moving the bit of Hg I have left?). I have potassium on hand and will...